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Nairaland Forum / Nairaland / General / Health / 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior (24335 Views)
World Sickle Cell Day / June 19th: World Sickle Cell Anaemia Day / University Of Ibadan Discovers Cure For Sickle Cell (2) (3) (4)
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Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 12:37pm On Jun 19, 2015 |
patrickdarlins: I didnt just decide on my own dear, I made the decision with the help n approval of God n my docs Besides, our resistance n body systems are all different, what works for you would definitely not work for me |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by dupsai(f): 12:40pm On Jun 19, 2015 |
Apart from medication another thing that keep warriors going is the WILL TO LIVE. Ive bn there @ 44yrs now with 2 beautiful kids and an understanding husband n family l can say im lucky....... BUT its not luck but the grace of JEHOVAH RAPHA. There are times that the pains get tough and i feel like giving up but i always know that TOUGH TIMES never last but TOUGH PEOPLE do. With prayers n believe in God n yourself you can not only be a WARRIOR but a CONQUEROR............. Cheers everyone out there, better days ahead. 17 Likes 4 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 12:40pm On Jun 19, 2015 |
Abali1:been around too...but just needed some posts!!. its great we growing old..living the life... 4 Likes 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by akatekpe(m): 12:42pm On Jun 19, 2015 |
DankemzI:Are you in this country at all? 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by sirabbey(m): 12:45pm On Jun 19, 2015 |
treasuremabel: Great. You're indeed a smart, brave and tough lady. My third questions is precipitated on the herditary nature of sickle cell anaemia (union of AS & AS, AS & SS and SS & SS). However I have come across some sickle cell sufferers and carriers who would not be guided by this scientific rule but choose their spouse irrespective of his/her genotype. Many of these people are people of faith who choose miracle & faith over scientific guidance. What is your take on this? 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by ugogozi: 12:48pm On Jun 19, 2015 |
hummm I have been through pains. alot d fact is DAT I hate drugs .am 20years now God has always been with me never knew still see dis day .been a ss is nt d end of life we just have to keep hope alive .... 4 Likes 3 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by GodMode: 12:48pm On Jun 19, 2015 |
UnknownT: I had an SS friend that lived that way... He's dead... He may have been depressed that he was a sickler and tried to live normally like non-sicklers... Sicklers tend to live in denial... treasuremabel should better keep her meds close if she's full SS... 2 Likes |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 12:50pm On Jun 19, 2015 |
sirabbey: My own bible says wisdom is profitable to him that has it, therefore, get wisdom! I can't no, I will never under any circumstance have anything intimate to do with an AS/SS guy not to talk of marriage I chose to be guided by my experience as a warrior n the scientific rule Don't get me wrong, I believe in faith n miracles but seeing a danger n jumping into it with the hope that a miracle would happen n protect you is absolute foolishness 11 Likes 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Dahjhi: 12:50pm On Jun 19, 2015 |
animality:Capital NO #BeInformed 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Dahjhi: 12:52pm On Jun 19, 2015 |
Picomon:#WeSurvive #GodWin... Survive on bro 2 Likes 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Lilyomi(f): 12:54pm On Jun 19, 2015 |
This is jus touching. Also ur clothing is helpful esp. during this cold period. Pls dress to kip urself warm. Yes u are a warrior. The pain is not a joke but u r stronger. 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 12:54pm On Jun 19, 2015 |
treasuremabel:am with you on this,a case of "prevention better than cure" 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by eseh1(f): 12:58pm On Jun 19, 2015 |
Leem4:...if both parents aren't AS, so hw cum u re SC? Dis giving me great tot nw? 1 Like |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Kay005: 1:01pm On Jun 19, 2015 |
Pls guys i think SS is quiet different from SC. It is only SS that is sickle cell anaemia why are SC's too calling theirself warriors? |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 1:04pm On Jun 19, 2015 |
Kay005: Both are sickle cells but differs slightly. Sc also go through crisis aswell 2 Likes |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 1:04pm On Jun 19, 2015 |
continuation.... they asked...when last did u take ur medication??... i was just looking at dem...the doctors already knew i was not taking my drugs...so they gave me an injection to kill the accumulated pains and whatever i have in my body...i struggled with pains for one week..i mean PAINS....before i could be relieved a little.. a lady came in and talked with me privately..and she says my dear..u dint choose this life..its never what u wanted..but since it happened now..will u kill your self??...will u neglect ur drugs cos u feeling strong(as i heard those words..negligence of drugs)..will u not follow the proper way of treating it so u will last long?..what pleasure will u derive from putting ur parents and loved ones in pains and panicking whenever you having crises??...so many if's and please.. from that day..i realised that ONCE A SICKLE CELL ALWAYS A SICKLE CELL....no matter how strong you feel you are..never neglect your medication...YES we may be different in all our appearances..BUT A SNAKE WILL ALWAYS BE A SNAKE...NO MATTER THE COLOUR..THE TYPE..THE BIGNESS OR SMALLNESS OF IT... MY dear..please dont neglect your drugs oo...at least you can go with out drugs for weeks ...but not months nor years.... please..i beg u....take them once in a while..to avoid stories o..to treat accumulated pains as a sickle its dangerous seriously.. i go without drugs too..but i know my limit..am 28yrs old now...an ACCOUNTANT BY PROFESSION..almost done with my NYSC PROGRAMME...few weeks to go..before i start working by GODS grace.. planning on writing a book on SICKLES...when i attain some certain level..STAY WELL PEOPLE...LIVE HEALTHY!!!!! 9 Likes 2 Shares |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by dupsai(f): 1:11pm On Jun 19, 2015 |
Most of these 'people of Faith' are the one that will easily give up and start questioning God when the problem started. Years back i was 'healed' @ a crusade and even testified to it, my Doctor conducted a test n seeing my desperation told me that my genotype has bn changed to AA. I Stopped all medication only to found myself admitted @ LUTH. It was d mercy og God that brought me back! God says He will not give us trials we cannot carry, in the midst of it He will provide a way out. It is not wise to tempt God n bring a child to this world suffer pains because of selfish interest. 2 Likes |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by ugogozi: 1:13pm On Jun 19, 2015 |
am a law student now 20years old I hate crisis d pains are much |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by lanre47: 1:16pm On Jun 19, 2015 |
It is not easy but i thank God for your life. I will like to prescribe this drug called ''Even Flo'' for all the warriors. I can tell you it works like wonder. I have warriors around me and since they started using this herbal drug, they have a new testimony. You can Google it. It being manufacture in USA by a company called Healing Blend Natural. Also, try taking a lot of coconut water, it neutralizes the system. Spinach (ewgu leaf) is very good for you. You can blend it to get the water out, drink it at least twice a week. it really helps. Stop eating junks, fast food, sugary drinks. Take natural juice If you need the Even Flo, I can help you out with it or you can order for it on line. Bless you..... 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by sirabbey(m): 1:16pm On Jun 19, 2015 |
treasuremabel: Great answer @treasuremabel. Wisdom is profitable to direct Ecc 10:10 The situation of not taking your drugs as a sickle cell patient is akin to choosing one's partner irrespective of his/her genotype- it is a recipe for disaster. While I understand and respect the peculiarities of your choice, I think it should not be encouraged. Hence I advise you pay a second thought at patrickdalins experience. People of faith should realised that miracles also happen by taking your drugs, afterall many others took the same drugs but it never worked for them. You're a great girl, you're a warrior, keep fighting for you shall conquer. 2 Likes |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Nobody: 1:18pm On Jun 19, 2015 |
sirabbey: Thanks, really appreciate |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Valfrankie(m): 1:19pm On Jun 19, 2015 |
A big congratulations to all fellow warriors worldwide, I'm sure we all 've our stories to tell. As a warrior and a fresh graduate currently serving in Lagos, it 'll amaze you when I say I'm hearing impaired, though I wasn't born deaf. I do not despair cos I know I 've a GOD, and He hasn't abandoned me yet cos na my Big daddy Him be. GOD 'll see us all through our difficult moments, it's not easy but with GOD, we 'll overcome. No intimidation, harrassment, discrimination, crises or any infection 'll hold us back on this march to the top where we belong, we're warriors, we are special people in a shiny armour made only for the top and we 'll get there. GOD be praised! Long live all warriors worldwide!! One Love brothers!!! 7 Likes 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Lizboh(f): 1:24pm On Jun 19, 2015 |
I am touched by all d post above mine, I once lost a sibling to as crises, menh d pain was always unbearable even as am typing now am remembering his pains now, one person will b massaging his left hand while another person will go for right hand. Though it's more than twenty years ago but I still missed you OLUWAROTIMI ALABI, You are the greatest warrior of all time. To all other warriors out there may the Lord in his great mercy continue to give you all the strength to carry on, your family shall not cry over, you shall grow in the grace of the Lord to see your grand children 7 Likes 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by tomayira(f): 1:32pm On Jun 19, 2015 |
okpurukata:. I would like to meet with u, I stay in Port harcourt too and also have a warrior. Tried sending a mail but couldn't, will be glad if u can send me an email, thanks. 2 Likes 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by stonecoldcafe: 1:33pm On Jun 19, 2015 |
Leem4: AC? Is there AC? I know AA, AS and SS. I now need to immerse my head in wikipedia for the next few minutes. BRB In other news God bless yall warriors. His grace is sufficient. 2 Likes 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by mavelo: 1:37pm On Jun 19, 2015 |
animality:please how sure are you? I need prove. |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by tomayira(f): 1:39pm On Jun 19, 2015 |
First of all I want to say a BIG CONGRATS to the WARRIORS worldwide, please does bone marrow or stem cell transplant work. I heard it's the only cure for now. |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by animality: 1:49pm On Jun 19, 2015 |
mavelo: I READ IT IN SOME MEDICAL MAGAZINE SOME TIME AGO. I DON'T REALLY KNOW BUT I WILL RESEARCH IT |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by Abali1(m): 1:51pm On Jun 19, 2015 |
stonecoldcafe:There's AA, AS, AC, SS,SC,CC, Sickle Beta thalassemia, there maybe some others. Those saying SC is not sickle Cell........Yinmu. When the pain comes, maybe you can tell someone who has SC that s/he is not living with sickle Cell. 1 Like |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by sunnydayasaba(m): 1:52pm On Jun 19, 2015 |
Reading this stories reminds me of my pain, I lost a niece last 2 years that was just her first crisis at age 3,, Yesterday i also lost a cousin, a very close one at that to same major crisis. He collapsed playing football, he was in his final year at d university. I still have another small niece still a carrier, each time i look her in d face. I jst remember her late sister, she's 5 now and we make sure she take her drugs and watch her closely. Now my elder bros wife is pregnant again, but where determine to do a foestus test to determine the child's Genotype before she puts to bed, if we found out d child is going to be a carrier, she will have to abort it. We cant take it anymore, it really hurt watching them go through pains during their crisis time. Grt love to all Warriors, God will continue to strengthen you all. |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by whoisuche: 1:53pm On Jun 19, 2015 |
treasuremabel: TO GOD BE ALL THE GLORY IN THE MIGHTY NAME OF JESUS CHRIST AMEN. 1 Like 1 Share |
Re: 19th June - World Sickle Cell Anaemia Day. My Story As A Warrior by sinisters(m): 1:55pm On Jun 19, 2015 |
Your greatest ally is God, am not a peacher am just speaking from experience. He knows how to ease the pain. As a maintenance engineer The stress I go through is unimaginable yet God helps me. I hate mosquito bites ,cold is preventable by jackets. I don't joke with folic acid and bco plus multivite. Tramadol is always in my back pack. I pray and believe in God so I survive. I know my boundaries though. Everything depends on God and your disposition to live. Never never never never give up. 3 Likes 1 Share |
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