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Nairaland Forum / Nairaland / General / Health / 'Help! My Two Year Old Has SS Genotype' (42831 Views)
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Re: 'Help! My Two Year Old Has SS Genotype' by fuelsaver: 3:57pm On Feb 08, 2016 |
If you have faith Take that child to Synagogue scoan get the anointed morning water and have it administered on the child. You will be glad you did. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by timidapsin(m): 3:57pm On Feb 08, 2016 |
dominique sweet heart common please unban me from Business forum its over a year now ban expires 2106 haba not fair now ![]() |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 3:59pm On Feb 08, 2016 |
cc. dominique Perfectly understand the travails of the mum, as the care for a sickle cell disease child isn't isnt a joke. From the foregoing, it's not out of place to take it that the child is indeed SS and suffered an acute sequestration crisis while playing at school. There prolly was a mix up (deliberate or not) in the previous test done with her spouse. She has to quickly exit the denial stage of grief which she is in right now and accept the reality. Yes there is a cure for sickle cell disease, (stem cell transplant) however it's not gained wide acceptance in Nigeria and is limited by the high cost of the procedure. A few of our teaching Hospitals offer this treatment (UBTH-Benin, UCH -Ibadan, LUTH -Lagos.) the much I know.However she would have to discuss with the doctors at the primary care hospital on the basics of management for her kid. On to the last issue - Nothing stops her from having further kids and it doesn't mean they would all turn out to be SS, the apparent chance that she has further SS kids is 1:4(one ratio four pregnancies) for each pregnancy. Interestingly, she could determine early on in the pregnancy, as early as the 5th week if the child has SS or not and it could be treated in the womb (in -utero) or otherwise. These advancements are offered in one or two of our health centres (especially private whose names I can't mention). Essentially, it's not the end of the world. 5 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by wendypenny: 4:00pm On Feb 08, 2016 |
What u Need is a miracle. And you can only get it from God. We have testimonies of SS turned to AA. Be strong in faith. God can heal and correct his genotype and even yours. If u can, pls visit Omega Fire Ministries headquarters in auchi Edo State. To see God's servant Apostle Johnson Suleman. You will surely Testify. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by olaolaking: 4:00pm On Feb 08, 2016 |
ayxmania:Please people should stop giving examples of how this killed someone they know. This will kill the energy of this woman the more. She already knows about it and that is the reason she is crying for help. Such examples are not helping her but killing her. People should come out with up-buildind experience 9 Likes 1 Share |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 4:01pm On Feb 08, 2016 |
SylarsMcQuins: I am AS and my wife is AS but we don't have any SS child among our children. The youngest among them is now 16 years. Who says you can't have children that is not SS, Be a born again christian 6 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by yommys01(m): 4:01pm On Feb 08, 2016 |
Such a terrible place to be in. Someone's mistake is what you are paying for now. This is why going for second test is always a good idea. I am AS, I ensured my wife did the test even though she had done it before we met. The only thing you can do is follow the doctor's advise and always try to get a second opinion. Recently we discovered my sister is SC which hurts but nothing anyone can do. Order than pray and advise her to use meds as prescribed. |
Re: 'Help! My Two Year Old Has SS Genotype' by yommys01(m): 4:05pm On Feb 08, 2016 |
toyetade:Let's not play religion with this. We shouldn't be tempting GOD. The fact that you are blessed not to have SS despite you and your wife been AS/AS doesn't mean everyone will be so blessed. 8 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by EagleScribes: 4:07pm On Feb 08, 2016 |
Hello Dominique, it's such a pathetic situation and I relate very well with this. What do you do? Live with hope and not despair! He's a warrior! Keep away from those words that lead to fear I will refer you to Abali1 and recommend a chat with him. If for nothing, your faith will be strengthened As for posters who don't have rights words to say, it's better you keep quiet. This issue is not funny at all It is well 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by Vyolet(f): 4:07pm On Feb 08, 2016 |
All these guys and their lies, only God will save women.. It is obvious the husband lied to her that he is AA just to get her to marry him, the test was arrangee as well. It is the child I really pity. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by Mbkite(m): 4:07pm On Feb 08, 2016 |
OP, I advise you take the baby to SALVATION MINISTRIES IN PH. This may sound somehow, but just apply little faith and bring her. It has to work. God bless you |
Re: 'Help! My Two Year Old Has SS Genotype' by bullabong(m): 4:07pm On Feb 08, 2016 |
Sue the hospital that misled you and your husband into this painful parenthood. |
Re: 'Help! My Two Year Old Has SS Genotype' by samuelson06(m): 4:08pm On Feb 08, 2016 |
dominique:Send me a PM. |
Re: 'Help! My Two Year Old Has SS Genotype' by LegendaryArnold(m): 4:10pm On Feb 08, 2016 |
I thought you must have known his genotype right from birth. And being SS isnt the end of the world. Just give him the regular medications as prescribed by a doctor specialized in that field and he will be just fine. Dont make him feel like one too and i strongly doubt if your other kids will be SS. Shalom |
Re: 'Help! My Two Year Old Has SS Genotype' by NeroPapas(m): 4:10pm On Feb 08, 2016 |
This is very pathetic. In 2016? I'm kinda angry cos someone lied if truly the child is SS. Yes the situation is a very serious one but I wanna say we are not God...the child could find mercy through prayers. The disease has killed many but the truth is people live with it too. I said live with it cos not everyone with the disease would get cured miraculously. I heard of a man who is 66 and he's still going strong. I know of people in their 30s and 40s doing well with it. As someone said, all the child need is love at this tender age...and as he grows, educate him on how to manage himself and not engage in everything his mate does. Please go and do a rerun test in order to ascertain both your status and prevent future occurrence. I pray God cures the Child cos he's innocent. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by felsunseg(m): 4:10pm On Feb 08, 2016 |
don't worry It may sound ackward but what u need is d help of a good doctor. u need to find out if there is away to know if the child u are pregnant with has SS before it matures fully. with DAT u can be able to abort the one that has SS. this is just my opinion as some people are against abortion. no bashing please. |
Re: 'Help! My Two Year Old Has SS Genotype' by Jok3r(m): 4:14pm On Feb 08, 2016 |
dominique: my dear pls pray well cos notin doctor s cn do. or beta still c PST. David ibiyieomie |
Re: 'Help! My Two Year Old Has SS Genotype' by aalangel(f): 4:14pm On Feb 08, 2016 |
Run to Jesus. He's your healer. |
Re: 'Help! My Two Year Old Has SS Genotype' by DeathStroke007(m): 4:16pm On Feb 08, 2016 |
Re: 'Help! My Two Year Old Has SS Genotype' by chokovirus: 4:16pm On Feb 08, 2016 |
Yours is a sad case scenario. You can make some lemonade outta d lemon you have. If you still have your husband's result you can sue that hospital for medical malpractices and the consequent implications that error is bringing your way. I will advise you take the Child for healing and deliverance services with Dr. Paul Enenche @ Dunamis Church, Area 1 or connect even online streaming for the service. Change of genotype is a minor business there. |
Re: 'Help! My Two Year Old Has SS Genotype' by Nelico: 4:17pm On Feb 08, 2016 |
Its a horrible experience to see ur innocent child in sickle cell crisis, that of ur child likely to be sequestration crisis. U have the options of investigating ur husband and the lab for criminal conspiracy. U can actually have normal healthy children (25% chance) and healthy carriers (50% chance). For the cure, Sickle cell is curable by bone marrow transplant, but its quite expensive (about 5 million Naira). Also make sure the child drink water all the time and take penicillin and malaria drugs, at least once a week to reduce the rate of the crisis. My colleage (Senior Medical Doctor) is approaching 50 yrs with the disease but still kicking strong. Also, remember God is the ultimate. Always pray and ask for his intervention. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by DeathStroke007(m): 4:18pm On Feb 08, 2016 |
allanphash7: knowledge is power... ask and you will know. before you start wailing. as an educated fellow, find out if it's true or not before saying trash.. you welcome |
Re: 'Help! My Two Year Old Has SS Genotype' by aalangel(f): 4:18pm On Feb 08, 2016 |
MentalCase: Mr. Mental case. Did you read her story at all ![]() After the son's illness, they went again and it changed to AS. Blame the hospital, not the couple. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 4:19pm On Feb 08, 2016 |
Jok3r:Ur a pathetic fellow, SMH for you. It's ur pastor that ur advertising, not the Jesus of your pastor. The gullibility of Nigeria xtians deserves an episode on Discovery channel. cc chokovirus cc wendypenny 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by grandstar(m): 4:19pm On Feb 08, 2016 |
There's a cure; bone narrow transplant Read about it. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by aalangel(f): 4:19pm On Feb 08, 2016 |
Run to Jesus, He's your healer!! |
Re: 'Help! My Two Year Old Has SS Genotype' by aalangel(f): 4:21pm On Feb 08, 2016 |
Jesus only can help you. |
Re: 'Help! My Two Year Old Has SS Genotype' by FullDepth1: 4:30pm On Feb 08, 2016 |
My Dear, This is what i have to say: Sickle Cell Disorder (SCD) is not the End of Life. Just Brace yourself. There is Nothing you can do about it now. Your Child is going to have lots of Crisis (It's the Term used for Sickle Cell Patients when they go through Deep Pains). You will have lots of Sleepless Nights, But if your child is Strong enough, he will Scale through (I mean Grow Old and Achieve things). Many People are living with the Disorder up till 60 and above. Not trying to scare you, but your baby might have lots of breakdowns, you have to be strong for your baby. Never Despair. You need your baby to stay healthy and strong?? Then:- * Avoid Malaria attacks, * Colds, * Infections, * Try to boost your Baby's Immune system, lots of organic Fruits. * Also give your baby normal dose of Folic Acid. (Your doctor will advice you better) * Your baby has to eat well, and Stay off Germs. Please, you really need to see a good Doctor. There is a Drug out there, it helps the people living with this disorder (i cant disclose the name, before it gets abused. See your Specialized Doctor) Also, Bone Marrow Transplant is Available. It Treats and Cures this. Do some Research on it. Mind you, it is Not readily available, and It is EXPENSIVE (From the Name, you can deduce its form of treatment). Register with a Sickle Cell foundation (Go to Luth), the earlier, the better. so you'd have Clear and Vast knowledge of SCD. You and your husband have to be strong. Stand up and Face it. It is possible to have babies without the SCD, but the probability is not high. Lastly, I am very Spiritual, and i know GOD can Cure Every Ailment/Disorder. So if you also have Faith, you can start Rigorous Prayers. My little chips. Cheers my dear, God Bless. 4 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by lifenajeje(m): 4:31pm On Feb 08, 2016 |
All u need is a positive altitude towards the child.... My friend and his inlaws have always maintained a positive altitude towards his wife/ daughter......she is 36 with 3 children and for over 15 years she had crises just twice. |
Re: 'Help! My Two Year Old Has SS Genotype' by allanphash7(m): 4:32pm On Feb 08, 2016 |
Is tha you in the picture? If yes then i cant exchange words with someone like you Slave of muhammed DeathStroke007: |
Re: 'Help! My Two Year Old Has SS Genotype' by dominique(f): 4:33pm On Feb 08, 2016 |
maryhaam: And which of the 21 did he break? |
Re: 'Help! My Two Year Old Has SS Genotype' by dhabeautyjas(f): 4:33pm On Feb 08, 2016 |
Melahou: its people like you that allows problems persist, instead of seeking solution, you attribute everything to spiritual. shior Lagusta: i concur dominique, please go for another test for confirmation in a government hospital. most of the so called private health institutions (hospitals, labs etc) are profit making ventures and are not really very reliable. after the test, you will know what next to do. i used to be very ill when young but am not ss, so it may be a mistake on the part of the lab technicians. but if its confirmed, then talk to your doctors and know how best to manage it, there are many ss that managed theirs well and you can hardly know. just be ready to stand strong. |
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