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'Help! My Two Year Old Has SS Genotype' - Health (7) - Nairaland

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"We Are Both AS Genotype And We Don't Consider Break-Up As An Option" / Yes, It Is Not Impossible. 'AA' Can Marry 'AS' And Give Birth To 'SS' / Why You Should Know Your Genotype Before Considering Getting Married (2) (3) (4)

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Re: 'Help! My Two Year Old Has SS Genotype' by SURElee(f): 9:28pm On Feb 08, 2016
tensazangetsu:

Actually bone marrow transplant can cure sickle cell.


What is the successs rate of bone marrow transplant. A woman with 3 SS kids went for it and only 1 came back alive with her.
Madam in your case, either it was a mistake from the laboratory or your hubby bribed for the result to be tampered with and my guy feeling is sticking wiith the later.

You need to be strong for your son. Its sad and painful to waatch your child in pain for a disorder without cure. This child is just going to be your full time job as you won't be able to pursue a career cos you'd be absent from work for admission, doctors appointments, crises and all. The Lord is your strength.
Re: 'Help! My Two Year Old Has SS Genotype' by nwoye72: 9:32pm On Feb 08, 2016
daretodiffer:

grin
may God give you solutions
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 9:36pm On Feb 08, 2016
DeathStroke007:




Fool.. na ur papa aoz em dey use treat people before the advent of hospital
hahahahahaha.. Don't 4get to tell ur guy my message ok??
Re: 'Help! My Two Year Old Has SS Genotype' by sorepco(m): 9:41pm On Feb 08, 2016
I concur...not only a ban but also bombadment...banishment...bastadization....beheaded....he seems to be becloded by bestial thoughts!!
By the way op...go and do another check in a reputable hospitalm was ur husbsnd not lying??


Lagusta:


@dominique dont you think this man deserves a life ban
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 10:33pm On Feb 08, 2016
SylarsMcQuins:
Genotype's don't change, so its either u ve a divorce, risk having more SS kids or say no to child bearing....

Genotype doesn't no love, coz its one hell of a reality check..

divorce ke cos of genotype? i know of a couple (both medical docs) that are both as and still went ahead and married.
The courted for so long before discovering it and couldnt let each other go cos there are means for them to have ss free babies. i think ivf is part of the means. The doc tests d fertilized eggs before inplant. The cost of ivf is not as expensive as it used to be as at that time. so i say she can still have more healthy babies (if the cash is there).

ssa has a cure. i know university of benin sometime a go performed the surgery and it was successful. It is either stem cell or bone marrow transplant ( not sure wat they called it). i heard it abt 15 years ago when they were the first hospital in nig to successfully perform the surgery. You can go to the hospital and ask .

I just pray ur child is not suffering ssa, bt if he is, it will do u good to take some nursing courses.
I know of a senior mgr (both husband and wife are very rich) that have 3 kids with ssa. The mum took some nursing courses and administers injection to the kids herself. The injection are given at at specific dosage and certain times and d kids hardly have crisis.

It is well.

1 Like

Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 10:50pm On Feb 08, 2016
Pavore9:
You need to do a re-run of tests to put things in the clear.
hi brother
Thanks for opening up abt card on the other thread.. Please can I know how much it will cost to arrive in Nairobi? If there is a cheaper way of getting the card.. Kindly inform me please...

Lastly, are you very sure I will have the card when I arrive Kenya?
Re: 'Help! My Two Year Old Has SS Genotype' by nervorum: 11:31pm On Feb 08, 2016
Please do not despair, if confirmed the child is SS, plan and go for stem cell transplant.His age is just perfect for it.

Stem cell transplant is currently a more permanent option, and its available at UBTH and other places, with a high success rate.Thgh maybe expensive (not sure, 1-1.5M), its worth the investment, considering the quality of life the child may have if you do any less.

Having said that..common things occur commonly..its more likely the supposed father did not sire that child, than that there was a mix up of his result in the lab;the latter is likely but the former mostly obtains..sorry about how it sounds, its a fact.

Both of you need to go to a good lab(recommend Pathcare), or a govt general hospital to repeat your blood genotype. Make up your minds to deal with the outcome, it can be very revealing; what happens if the father is indeed AA?

If this was due to clerical error ab initio, and both of you confirmed to be AS, then you plan the way forward.
You guys may also consider suing the lab where your hubby did the test before marriage.

I have heard say on nairaland that AA/AS can give rise to SS, pls do not take solace in dat deceit, do the right thing to enable you take the right step and make correct informed decision about other children.

You will pull through.
Re: 'Help! My Two Year Old Has SS Genotype' by nervorum: 11:38pm On Feb 08, 2016
SURElee:



What is the successs rate of bone marrow transplant. A woman with 3 SS kids went for it and only 1 came back alive with her.

Success rate is high, depending on the age of the child; the younger the better, and depending on the number of crisis suffered in a year and whether complications have arisen.

Cases are usually carefully selected, not all scd are eligible for transplant..
Re: 'Help! My Two Year Old Has SS Genotype' by blessedtwins: 11:40pm On Feb 08, 2016
Op open ur eyes and smell the coffee.
Ya hubby lied to u.
Genotype doesn't change
If it were to change by a miracle,it would have been from AS to AA.

1 Like

Re: 'Help! My Two Year Old Has SS Genotype' by abdussalam(m): 11:42pm On Feb 08, 2016
DeathStroke007:
Ask Prophet Muhammad (saw) about the cure... there are lots of cure of illness that he's already told us before he died..


May Allah help you

You should tell people to ask Allah alone! Muhammad can do nothing. Allah has power over all.

2 Likes

Re: 'Help! My Two Year Old Has SS Genotype' by mayorall(m): 12:19am On Feb 09, 2016
dominique:
A worried mum sent us this


Plese advise accordingly and DO NOT QUOTE.



Behold, I am the LORD, the God of all flesh: is there any thing too hard for me? .

IT IS WELL.

3 Likes

Re: 'Help! My Two Year Old Has SS Genotype' by swagficient(m): 12:50am On Feb 09, 2016
I did my IT in a hospital where AS and AA always have the same markings on their electrophoresis Machine. Go to a good hospital with a great Lab and make sure it isnt a bad joke
Your son deserves that too and better. Make sure He takes His normal drugs. Go for checkups frequently, avoid mosquitoes totally and pls and pls treat Him like a normal Child. He will grow to be the son you r proud of.
Btw. Ministry of health sells a drug for SCDPs called Nicosan. Its good. Supplements helps alot. Prayer actually happens to be the Major factor.
And for having other kids.... You have a big chance of not having one anymore. Prayers still do Wonders. Be Positive, Be Happy.

4 Likes

Re: 'Help! My Two Year Old Has SS Genotype' by Masculity(m): 1:16am On Feb 09, 2016
Lanretoye:
Eeyah,its a pity...
Prolly one person lied through an arraggee genotype test,I think all of you should go for a confirmation test but if things are still the same,u should just relocate to reedeem camp(real madrid) or synagogue (barca). Depending on which one of them you choose, someday in one of those night vigils God might just decide to have mercy on you and ur family.


some post go fey wake dead body. Lol. Chai
Re: 'Help! My Two Year Old Has SS Genotype' by osisibch(m): 2:52am On Feb 09, 2016
Nairaland una laws plenty o! Anyway it's a pity u e in this ss mess d chances of having ss/as is 50/50......but one bitter truth.....u r really in for it,e no easy[color=#990000][/color]
Re: 'Help! My Two Year Old Has SS Genotype' by osisibch(m): 2:54am On Feb 09, 2016
osisibch:
Nairaland una laws plenty o! Anyway it's a pity u e in this ss mess d chances of having ss/as is 50/50......but one bitter truth.....u r really in for it,e no easy[color=#990000][/color]
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 5:53am On Feb 09, 2016
abbey621:


Genotype can never be changed, stop visiting quacks and go to a real lab!
So federal medical centre (FMC) is quack? YOU HAVE NOT SEEN ANYTHING
Re: 'Help! My Two Year Old Has SS Genotype' by Bobbieydeey: 6:20am On Feb 09, 2016
Lagusta:


@dominique dont you think this man deserves a life ban
he might be right, so many wicked people.
Re: 'Help! My Two Year Old Has SS Genotype' by DeathStroke007(m): 6:47am On Feb 09, 2016
abdussalam:

You should tell people to ask Allah alone! Muhammad can do nothing. Allah has power over all.




you got me wrong.. what i meant Is For The person to contact hadith on ailments
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 7:04am On Feb 09, 2016
My dear, use GOOGLE. U will get better advice and help
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 8:16am On Feb 09, 2016
What's with the "please call me or contact me with this details" for?? .. If you have any solution to her problem please drop it here and let everyone see it.. And u never can tell you might still be helping other sickles around...

Stop telling the OP to contact or call you.. .. U won perform private miracle or u get the cure for the child?please u guys should just stop already!!

OP... Don't get scammed through this means.. Sickle cell has no cure or whatsoever... Even that transplant they suggesting it's not always done on all patients. ... even if you like pay 20million...it has level and processes.. I repeat NOT ALL SICKLES CAN GO FOR A TRANSPLANT!!! ... I know what am saying...


OP... Best option is giving your dearly beloved son the required medication... and follow up his activities never to strain himself.. . Give him plenty of water and vegetables and fruits if possible always!!!!.. . Make sure he sleeps with clothes on every night.. and stay closer to him... make sure you understand him too well.... You his nurse automatically henceforth.. .. no other nurse can know how your child feels except you.. Don't let him carry heavy things cos it makes the bones(especially the joints) go into crises real quick.... These are just little tips I just wanna share.. .

Register your child in any of the sickle cell club/hospital.. .. you will be glad you did... They help reduce the risk by getting tips from them....

Stay well all ya

1 Like

Re: 'Help! My Two Year Old Has SS Genotype' by khassy(m): 8:29am On Feb 09, 2016
jairusben:
lame,,convince what,,no laboratory report can be changed by a doctor,,except the haematologist himself falsified the result which he wouldnt do because it has his signature on the report form,,and eventually a false result who demand him to loose his license which he wouldnt do that for how much,,, d hubby should tell were he gt his result from..#great haematologist

I would have insulted you but I woke up on the good side today , hematologist and everybody in the medical line to me apart from a nurse is a doctor...


Now check the bolded

Whats the diff BTW that and what I said about her confronting him to come out clean


And didnt you see where I inserted Maybe at the beginning




All this NL'ders always trying to show off sha


Haematologist korh... Lawnmatologist ni undecidedundecidedundecidedundecidedundecidedundecidedundecidedundecidedundecided
Re: 'Help! My Two Year Old Has SS Genotype' by sunnybills(m): 10:31am On Feb 09, 2016
Contact me on hgslnigeria @
gmail.com. there is a product for SS management i know of.
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 12:18pm On Feb 09, 2016
ifeooye:
Honestly speaking, this is what have being going through for the past 17yrs concerning my son, mix up in genotype....first, AA and when we discovered that the boy is SS, we checked and it was AS... but ours is a bit different because up till now we have not recorded any serious crisis(TO THE GLORY OF GOD), The boy is now in the university now hale and healthy to the Glory of God. Let me advise you on three things to do.
1. take the child to sickle cell foundation, opp LUTH @Idi-araba for consultation.
2. Register the child in any General Hospital for periodical check-up
3. Hand over the Child to His Creator with strong faith that He shall live but not die.
Amen .thank u for your advice .will do just that tho he is registered with a a general hosp at Ikeja
Re: 'Help! My Two Year Old Has SS Genotype' by tobatele(m): 4:23pm On Feb 09, 2016
Madam, please take heart. It is not easy, but the only thing we can tell you is to take it easy. To those who have been pointing accusing finger to the husband, the husband might not be at fault. The experience, they say is the best teacher. I am speaking from experience. I experienced the similar fate in 2013. I did my genotype in one of the catholic hospitals in the country before I got married. I was told that my genotype was AA and based on this I contracted a marriage with my wife who is AS. We gave birth to our child and about four months later, the guy was looking pale. We took him to the hospital only to discover that the guy was SS. On the other of the doctor in one of the Federal Medical Centres, the test was done on me again and ALAS! My genotype is AS. Presently, the case is in court. It has not been easy but I have put my mind on God.

Madam,you have only God to rely on. But just take care of the child who knows what can happen tommorrow. I know of one important figure here in Nigeria who is SS and is above 70years.

Ensure that you give him folic acid everyday with paludrine. Let him take blood tonic that has no iron on regular basis. Give him natural fruits and water. Avoid mosquito bite, he should avoid stressful exercise, show him love. Isaiah 33:24 says a time is coming when nobody will say I am sick.

2 Likes

Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 4:45pm On Feb 09, 2016
sapiosexual1:
cc. dominique
Perfectly understand the travails of the mum, as the care for a sickle cell disease child isn't isnt a joke. From the foregoing, it's not out of place to take it that the child is indeed SS and suffered an acute sequestration crisis while playing at school. There prolly was a mix up (deliberate or not) in the previous test done with her spouse. She has to quickly exit the denial stage of grief which she is in right now and accept the reality.
Yes there is a cure for sickle cell disease, (stem cell transplant) however it's not gained wide acceptance in Nigeria and is limited by the high cost of the procedure. A few of our teaching Hospitals offer this treatment (UBTH-Benin, UCH -Ibadan, LUTH -Lagos.) the much I know.However she would have to discuss with the doctors at the primary care hospital on the basics of management for her kid.
On to the last issue - Nothing stops her from having further kids and it doesn't mean they would all turn out to be SS, the apparent chance that she has further SS kids is 1:4(one ratio four pregnancies) for each pregnancy. Interestingly, she could determine early on in the pregnancy, as early as the 5th week if the child has SS or not and it could be treated in the womb (in -utero) or otherwise. These advancements are offered in one or two of our health centres (especially private whose names I can't mention). Essentially, it's not the end of the world.
thanks for this advice .Pls I would love for us to talk more .I have pm u pls reply .
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 5:09pm On Feb 09, 2016
bettyLad:

thanks for this advice .Pls I would love for us to talk more .I have pm u pls reply .
Alright ma'am, didn't see no new mails in my box. I don't know wosup with the PMs.
We could talk on some other intererractive forum.
Re: 'Help! My Two Year Old Has SS Genotype' by donpata(m): 7:11pm On Feb 09, 2016
Its always good to tripple check genotype results .. some private clinics commit errors. My dad before marriage was tested AA while my mum AS. However, after the birth of the last child (a girl and no. 5) troubles started when she will always cry of pains here and there. We tested and she was confirmed AS. not satisfied, weve performed several test which showed she is indeed SS and my dad is AS too. All first four children are AS. We are lucky though cos most times, we get to manage the thing at home. As she grew older, the crisis became less frequent. She's 14 now and she has her bottled water on standby. She always drink lot of water to help the proper blood flow.

I can say that a Herbal drug a friend recommended for us really helped a lot. She could stay for 3 mnths now without any serious crisis. She has since discontinued its use but she is like a normal person now. Let the boy drink lots of water. cant say if the herbal drug could b given to kids his age though. Plus, i believe in miracles. Anything is possible.

1 Like

Re: 'Help! My Two Year Old Has SS Genotype' by jairusben(m): 8:11pm On Feb 09, 2016
[quote author=khassy post=42753873]

I would have insulted you but I woke up on the good side today , hematologist and everybody in the medical line to me apart from a nurse is a doctor...


Now check the bolded
Re: 'Help! My Two Year Old Has SS Genotype' by chrisseun(m): 10:42pm On Feb 09, 2016
.
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 6:54pm On Feb 10, 2016
EagleScribes:
Hello Dominique, it's such a pathetic situation and I relate very well with this.

What do you do? Live with hope and not despair! He's a warrior! Keep away from those words that lead to fear

I will refer you to Abali1 and recommend a chat with him. If for nothing, your faith will be strengthened

As for posters who don't have rights words to say, it's better you keep quiet. This issue is not funny at all
thanks for your contribution .pls who is Abali1

It is well
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 7:10pm On Feb 10, 2016
Thank u for your contribution. Non of us lied to the church,the church took us to their recommend hosp for the test,a place we never suspected before cos they always make their test center undisclosed, my father followed us as a witness so also my sis in law where all test HIV,pregnancy,and genotype test was conducted . I couldn't imagin making such mistake cos I left my previous relationship cos of genotype issue so I was very careful about it .
oc2fish:
Before dating any girl the first i ask for is blood type. One of you lied to the church. The risk of bringing another ss into the world is too much. Stop having children. The church do not want you to become prayer point for them that is why they demanded for the test. Please if you love him stay with him and manage the situation if not find your way out of the marriage. An SS child is a waste (really sorry).
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 7:28pm On Feb 10, 2016
Thank u for your comment ,the first thing the hosp requested for was abdominal scan before they 'll start treatment which we did .the scan came out fine everything is in place and they couldnt tell y the stomach was swollen without him having pains, to the glory of God a nurse asked wen last I deworm him and I told her 've never heard of deworming bwfore so she suggested I get a deworm drugs which I did and we gave to him .he started stooling whitish poo and the next day his stomach went flat .doc said even if he is a sickler what he is experiencing is not crisis but somthing strange .we r at Lagos state teaching hosp now cos he just kept requesting for water without food .he has been surviving on water for 6days now .pls put him in your prayers
GodMode:


if his a sickler and has swollen stomach dominique needs to do a scan as soon as possible... internal swelling can block flow of blood especially in sicklers cos sickle cell causes blockage of arteries and veins and prevent blood flow which leads to blood clot which could lead to crisis...

that the child is still alive is amazing... his case is critical

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