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Nairaland Forum / Nairaland / General / Health / 'Help! My Two Year Old Has SS Genotype' (43314 Views)
"We Are Both AS Genotype And We Don't Consider Break-Up As An Option" / Yes, It Is Not Impossible. 'AA' Can Marry 'AS' And Give Birth To 'SS' / Why You Should Know Your Genotype Before Considering Getting Married (2) (3) (4)
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Re: 'Help! My Two Year Old Has SS Genotype' by SURElee(f): 9:28pm On Feb 08, 2016 |
tensazangetsu: What is the successs rate of bone marrow transplant. A woman with 3 SS kids went for it and only 1 came back alive with her. Madam in your case, either it was a mistake from the laboratory or your hubby bribed for the result to be tampered with and my guy feeling is sticking wiith the later. You need to be strong for your son. Its sad and painful to waatch your child in pain for a disorder without cure. This child is just going to be your full time job as you won't be able to pursue a career cos you'd be absent from work for admission, doctors appointments, crises and all. The Lord is your strength. |
Re: 'Help! My Two Year Old Has SS Genotype' by nwoye72: 9:32pm On Feb 08, 2016 |
daretodiffer:may God give you solutions |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 9:36pm On Feb 08, 2016 |
DeathStroke007:hahahahahaha.. Don't 4get to tell ur guy my message ok?? |
Re: 'Help! My Two Year Old Has SS Genotype' by sorepco(m): 9:41pm On Feb 08, 2016 |
I concur...not only a ban but also bombadment...banishment...bastadization....beheaded....he seems to be becloded by bestial thoughts!! By the way op...go and do another check in a reputable hospitalm was ur husbsnd not lying?? Lagusta: |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 10:33pm On Feb 08, 2016 |
SylarsMcQuins: divorce ke cos of genotype? i know of a couple (both medical docs) that are both as and still went ahead and married. The courted for so long before discovering it and couldnt let each other go cos there are means for them to have ss free babies. i think ivf is part of the means. The doc tests d fertilized eggs before inplant. The cost of ivf is not as expensive as it used to be as at that time. so i say she can still have more healthy babies (if the cash is there). ssa has a cure. i know university of benin sometime a go performed the surgery and it was successful. It is either stem cell or bone marrow transplant ( not sure wat they called it). i heard it abt 15 years ago when they were the first hospital in nig to successfully perform the surgery. You can go to the hospital and ask . I just pray ur child is not suffering ssa, bt if he is, it will do u good to take some nursing courses. I know of a senior mgr (both husband and wife are very rich) that have 3 kids with ssa. The mum took some nursing courses and administers injection to the kids herself. The injection are given at at specific dosage and certain times and d kids hardly have crisis. It is well. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 10:50pm On Feb 08, 2016 |
Pavore9:hi brother Thanks for opening up abt card on the other thread.. Please can I know how much it will cost to arrive in Nairobi? If there is a cheaper way of getting the card.. Kindly inform me please... Lastly, are you very sure I will have the card when I arrive Kenya? |
Re: 'Help! My Two Year Old Has SS Genotype' by nervorum: 11:31pm On Feb 08, 2016 |
Please do not despair, if confirmed the child is SS, plan and go for stem cell transplant.His age is just perfect for it. Stem cell transplant is currently a more permanent option, and its available at UBTH and other places, with a high success rate.Thgh maybe expensive (not sure, 1-1.5M), its worth the investment, considering the quality of life the child may have if you do any less. Having said that..common things occur commonly..its more likely the supposed father did not sire that child, than that there was a mix up of his result in the lab;the latter is likely but the former mostly obtains..sorry about how it sounds, its a fact. Both of you need to go to a good lab(recommend Pathcare), or a govt general hospital to repeat your blood genotype. Make up your minds to deal with the outcome, it can be very revealing; what happens if the father is indeed AA? If this was due to clerical error ab initio, and both of you confirmed to be AS, then you plan the way forward. You guys may also consider suing the lab where your hubby did the test before marriage. I have heard say on nairaland that AA/AS can give rise to SS, pls do not take solace in dat deceit, do the right thing to enable you take the right step and make correct informed decision about other children. You will pull through. |
Re: 'Help! My Two Year Old Has SS Genotype' by nervorum: 11:38pm On Feb 08, 2016 |
SURElee: Success rate is high, depending on the age of the child; the younger the better, and depending on the number of crisis suffered in a year and whether complications have arisen. Cases are usually carefully selected, not all scd are eligible for transplant.. |
Re: 'Help! My Two Year Old Has SS Genotype' by blessedtwins: 11:40pm On Feb 08, 2016 |
Op open ur eyes and smell the coffee. Ya hubby lied to u. Genotype doesn't change If it were to change by a miracle,it would have been from AS to AA. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by abdussalam(m): 11:42pm On Feb 08, 2016 |
DeathStroke007: You should tell people to ask Allah alone! Muhammad can do nothing. Allah has power over all. 2 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by mayorall(m): 12:19am On Feb 09, 2016 |
dominique: Behold, I am the LORD, the God of all flesh: is there any thing too hard for me? . IT IS WELL. 3 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by swagficient(m): 12:50am On Feb 09, 2016 |
I did my IT in a hospital where AS and AA always have the same markings on their electrophoresis Machine. Go to a good hospital with a great Lab and make sure it isnt a bad joke Your son deserves that too and better. Make sure He takes His normal drugs. Go for checkups frequently, avoid mosquitoes totally and pls and pls treat Him like a normal Child. He will grow to be the son you r proud of. Btw. Ministry of health sells a drug for SCDPs called Nicosan. Its good. Supplements helps alot. Prayer actually happens to be the Major factor. And for having other kids.... You have a big chance of not having one anymore. Prayers still do Wonders. Be Positive, Be Happy. 4 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by Masculity(m): 1:16am On Feb 09, 2016 |
Lanretoye: some post go fey wake dead body. Lol. Chai |
Re: 'Help! My Two Year Old Has SS Genotype' by osisibch(m): 2:52am On Feb 09, 2016 |
Nairaland una laws plenty o! Anyway it's a pity u e in this ss mess d chances of having ss/as is 50/50......but one bitter truth.....u r really in for it,e no easy[color=#990000][/color] |
Re: 'Help! My Two Year Old Has SS Genotype' by osisibch(m): 2:54am On Feb 09, 2016 |
osisibch: |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 5:53am On Feb 09, 2016 |
abbey621:So federal medical centre (FMC) is quack? YOU HAVE NOT SEEN ANYTHING |
Re: 'Help! My Two Year Old Has SS Genotype' by Bobbieydeey: 6:20am On Feb 09, 2016 |
Lagusta:he might be right, so many wicked people. |
Re: 'Help! My Two Year Old Has SS Genotype' by DeathStroke007(m): 6:47am On Feb 09, 2016 |
abdussalam: you got me wrong.. what i meant Is For The person to contact hadith on ailments |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 7:04am On Feb 09, 2016 |
My dear, use GOOGLE. U will get better advice and help |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 8:16am On Feb 09, 2016 |
What's with the "please call me or contact me with this details" for?? .. If you have any solution to her problem please drop it here and let everyone see it.. And u never can tell you might still be helping other sickles around... Stop telling the OP to contact or call you.. .. U won perform private miracle or u get the cure for the child?please u guys should just stop already!! OP... Don't get scammed through this means.. Sickle cell has no cure or whatsoever... Even that transplant they suggesting it's not always done on all patients. ... even if you like pay 20million...it has level and processes.. I repeat NOT ALL SICKLES CAN GO FOR A TRANSPLANT!!! ... I know what am saying... OP... Best option is giving your dearly beloved son the required medication... and follow up his activities never to strain himself.. . Give him plenty of water and vegetables and fruits if possible always!!!!.. . Make sure he sleeps with clothes on every night.. and stay closer to him... make sure you understand him too well.... You his nurse automatically henceforth.. .. no other nurse can know how your child feels except you.. Don't let him carry heavy things cos it makes the bones(especially the joints) go into crises real quick.... These are just little tips I just wanna share.. . Register your child in any of the sickle cell club/hospital.. .. you will be glad you did... They help reduce the risk by getting tips from them.... Stay well all ya 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by khassy(m): 8:29am On Feb 09, 2016 |
jairusben: I would have insulted you but I woke up on the good side today , hematologist and everybody in the medical line to me apart from a nurse is a doctor... Now check the bolded Whats the diff BTW that and what I said about her confronting him to come out clean And didnt you see where I inserted Maybe at the beginning All this NL'ders always trying to show off sha Haematologist korh... Lawnmatologist ni |
Re: 'Help! My Two Year Old Has SS Genotype' by sunnybills(m): 10:31am On Feb 09, 2016 |
Contact me on hgslnigeria @ gmail.com. there is a product for SS management i know of. |
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 12:18pm On Feb 09, 2016 |
ifeooye:Amen .thank u for your advice .will do just that tho he is registered with a a general hosp at Ikeja |
Re: 'Help! My Two Year Old Has SS Genotype' by tobatele(m): 4:23pm On Feb 09, 2016 |
Madam, please take heart. It is not easy, but the only thing we can tell you is to take it easy. To those who have been pointing accusing finger to the husband, the husband might not be at fault. The experience, they say is the best teacher. I am speaking from experience. I experienced the similar fate in 2013. I did my genotype in one of the catholic hospitals in the country before I got married. I was told that my genotype was AA and based on this I contracted a marriage with my wife who is AS. We gave birth to our child and about four months later, the guy was looking pale. We took him to the hospital only to discover that the guy was SS. On the other of the doctor in one of the Federal Medical Centres, the test was done on me again and ALAS! My genotype is AS. Presently, the case is in court. It has not been easy but I have put my mind on God. Madam,you have only God to rely on. But just take care of the child who knows what can happen tommorrow. I know of one important figure here in Nigeria who is SS and is above 70years. Ensure that you give him folic acid everyday with paludrine. Let him take blood tonic that has no iron on regular basis. Give him natural fruits and water. Avoid mosquito bite, he should avoid stressful exercise, show him love. Isaiah 33:24 says a time is coming when nobody will say I am sick. 2 Likes |
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 4:45pm On Feb 09, 2016 |
sapiosexual1:thanks for this advice .Pls I would love for us to talk more .I have pm u pls reply . |
Re: 'Help! My Two Year Old Has SS Genotype' by Nobody: 5:09pm On Feb 09, 2016 |
bettyLad:Alright ma'am, didn't see no new mails in my box. I don't know wosup with the PMs. We could talk on some other intererractive forum. |
Re: 'Help! My Two Year Old Has SS Genotype' by donpata(m): 7:11pm On Feb 09, 2016 |
Its always good to tripple check genotype results .. some private clinics commit errors. My dad before marriage was tested AA while my mum AS. However, after the birth of the last child (a girl and no. 5) troubles started when she will always cry of pains here and there. We tested and she was confirmed AS. not satisfied, weve performed several test which showed she is indeed SS and my dad is AS too. All first four children are AS. We are lucky though cos most times, we get to manage the thing at home. As she grew older, the crisis became less frequent. She's 14 now and she has her bottled water on standby. She always drink lot of water to help the proper blood flow. I can say that a Herbal drug a friend recommended for us really helped a lot. She could stay for 3 mnths now without any serious crisis. She has since discontinued its use but she is like a normal person now. Let the boy drink lots of water. cant say if the herbal drug could b given to kids his age though. Plus, i believe in miracles. Anything is possible. 1 Like |
Re: 'Help! My Two Year Old Has SS Genotype' by jairusben(m): 8:11pm On Feb 09, 2016 |
[quote author=khassy post=42753873] I would have insulted you but I woke up on the good side today , hematologist and everybody in the medical line to me apart from a nurse is a doctor... Now check the bolded |
Re: 'Help! My Two Year Old Has SS Genotype' by chrisseun(m): 10:42pm On Feb 09, 2016 |
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Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 6:54pm On Feb 10, 2016 |
EagleScribes: |
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 7:10pm On Feb 10, 2016 |
Thank u for your contribution. Non of us lied to the church,the church took us to their recommend hosp for the test,a place we never suspected before cos they always make their test center undisclosed, my father followed us as a witness so also my sis in law where all test HIV,pregnancy,and genotype test was conducted . I couldn't imagin making such mistake cos I left my previous relationship cos of genotype issue so I was very careful about it . oc2fish: |
Re: 'Help! My Two Year Old Has SS Genotype' by bettyLad(f): 7:28pm On Feb 10, 2016 |
Thank u for your comment ,the first thing the hosp requested for was abdominal scan before they 'll start treatment which we did .the scan came out fine everything is in place and they couldnt tell y the stomach was swollen without him having pains, to the glory of God a nurse asked wen last I deworm him and I told her 've never heard of deworming bwfore so she suggested I get a deworm drugs which I did and we gave to him .he started stooling whitish poo and the next day his stomach went flat .doc said even if he is a sickler what he is experiencing is not crisis but somthing strange .we r at Lagos state teaching hosp now cos he just kept requesting for water without food .he has been surviving on water for 6days now .pls put him in your prayers GodMode: |
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