freecocoa: You lost them?

Ujujoan:


Don't take this the wrong way Freecocoa but can we please not talk about those we lost to the disease? Just for the OP's sake. I bet she doesn't want to know the statistics of people who died from the disease she's suffering from . . .

blink182: Poster, I empathise with you. Please I'm begging you, if you are in Nigeria please get Cellod-S. If not for that drug i'll be dead and forgotten.

At the peak of being a sufferer, these were my symptoms

Enlarged liver
Enlarged spleen
Protruding stomach
Protruding dentition
Pale skin colour
Weekly blood transfusion
Aching bones and joints
Skin ulcer
Always weak
Stunted growth
Constant fever
Thin limbs
Avascular necrosis of my left femoral head, this is the symptom that shows today as before I could get someone who could really treat it, my femoral head got deformed. I need arthroplasty to correct it, that is one procedure I refuse to do.

Yeah, my tummy is now flat, muscles everywhere, 6ft tall-my parents are and you can only imagine the embarrassment when my younger sister of 6 years became bigger than me. All that is in the past now, my protruding dentition is now a minor over bite.

My dear get that drug and start living and stop existing. The things I can do now ehn, all the missed sex, smooching, dating, drinking, my dear I even started smoking everything then stopped sha, its not my type of thing.

I can go on and on, I bath cold water, drink it, go cycling, even body building.

If at all, the only thing good about being a SCD sufferer is being brilliant. Not average brilliant, I mean fire for fire. I'm the dullest sufferer I know but the average person dare not challenge me to intellectual prowess.

Abali1:

blink, op maybe craving for pity attention and not to educate people about SCD.

Tlinkz: Thank you all for your positive feedback and prayers. A day in my life has always being like a nightmare, but now that I'm older and more matured to handle the situation, I feel happier and proud of myself and all I've achieved in life against all odds.

Thank you all once again, this really means a lot to me

ItsModella:
Either ways, she has gained our attentions and educated us. What matters is not the OP's intentions but the message she eventually passes across.

rodeo0070: @ Poster. Keep your head up. I know my God will not let you down. You will be surprised that "Impossible is nothing"...

Nothing dey happen. Keep your head up.
God almighty is in control...

tony_m1: VERY TOUCHING BUT I DO UNDERSTAND HOW YOU FEEL AND THERE IS NO POINT ASKING GOD WHY YOU.

AM AN SS THAT USED TO HAVE CRISIS NEARLY EVERY 6 MONTHS AND SPENT MOST OF MY TIME IN AND OUT OF HOSPITAL, PEOPLE USED TO FEEL SORRY FOR ME AND EVEN MY SIBLINGS, I USED TO QUESTION GOD ALSO. BUT ONE DAY I WENT TO AN HOSPITAL 15 YEARS AGO AND PRAYED TO GOD THAT MY TIME WILL NOT BE SPENT IN THIS HOSPITAL AGAIN AND THAT WAS THE LAST CRISIS I HAD.

I AM ON CONSTANT MEDICATION USING PENICILLIN AND FOLIC ACID, I DO HAVE PAINS SOMETIMES. IT'S BETTER TO LOOK AFTER YOURSELF AND HAVE MEDICAL CHECK UPS ALL TIME.

I PRAY THAT GOD WILL HEAL AND TOUCH YOU, ITS HARD AT TIMES BUT GOD IS MY STRENGTH .

apocalypse: I doubt this story is hers but a means to gain support for her own choice. With the advancement in medicine and science as a whole , ending your relationship with your other half based on genotype is no issue , come on information is everywhere - use it.
There are some people you can't live without

Abali1:

Yes, she gained your attention. But when she falls in "LOVE" with your AA brother, will you allow them to marry. Or will you tell your brother that there are other "HEALTHY" people out there?

Foxybone: THERE WAS A NATION

There is mayhem on the streets
Screams of pain coming out plentifully from onlookers
Blood flowing from dissected bodies
While others are aligned to be beheaded
A new movie indeed and the actors performing well
Buckets after buckets of animal blood is thrown
Height of cinematography being choreographed
But it yet brings to mind the decay in our society
A society that diversity is the trusting bond
And religion the apple of discord sown

There was once a nation
Flourishing under the watchful eyes of the slave-masters
Civilization they call it but in reality modern slavery
Noble families elected and taught the secret
Grin to your masters and your reward shall be much
Eyes opened and the slaves reveled
No more colonies we want our country
Governed by us and protected by our own laws
The slave-masters are shamed
Years of investment going down the drain
What more can be used to destroy the new nation of diversity
Aye!!! The apple of discord sown in religion

So our travails began
No succor to the many wars fought
Not with guns but with crude weapons of ancient weaponry
Daggers and bamboo sticks made ready for such purpose
Chants of war cry while the innocent suffers the brunt
O! There was a nation
Whose place has been overtaken
But solace it found in spilling blood
Blood of the poor masses and downtrodden
While the wielders of powers stay put on seat
Watching the sport of blood

There is a nation!!!
Whose advancement in technology meant death
Bombs improvised in the name of religion
While the nation becomes the testing sites
If ever you get to heaven
Ask the creator why there is a nation
And if there be any answer
Reveal it to me in a dream
While I drown my sorrows in this keg of plamwine

Dedicated to the Victims of Kaduna Bomb Blast

ItsModella:
My brother makes that decision not me. I expect him to know what is good for him. But to answer your question, yes. Using the punnett square, it is very (I mean highly) unlikely that they'll have a SS child. All their children will be have the AS genotype.

Abali1:

On the contrary, I believe it's her story. But she is still struggling with how she is being percieved by society. Hence this story.

apocalypse:

Okay but I still have my reservations

freecocoa: Excuse me Mister, what really is your problem? she shouldn't share her story because? If you have a problem with someone trying to educate others on the dangers of ignoring issues that arise with genotypes, then that's your problem, stop trying to paint OP as a cry baby.....not cool.