Hi, nairalanders it's traumatic being sickle diseased but worst is am scared I will lose my penis to "priapism".

It a very painful and prolonged election that is non-sexua*l and can last from 1-6hrs

The painful aspect of it is there's no specific time for this to happen tho it occurs mainly at night

I would really love to get people's opinion doctors, victims, caregivers and well informed individual

:when I told my doctor about it he sounded like he only knew the textbook meaning. Pls if u experience same ttin pls let me know how u manage it.

For better understanding:
What is a priapism?
Priapism is an unusual erection of the penis that is frequently painful and distressing. These are not associated with normal sexual function or desire.

The majority of males with sickle cell anaemia (HbSS) are likely to experience a priapism in
their life time.
Priapism is less common in boys and men with sickle cell disease (HbSC) and
sickle beta thalassaemia (HbSB).

There are two common types of priapism:
*Stuttering
*Acute (or fulminant).

What is a stuttering priapism?
The most common type of priapism is a stuttering priapism. It is called stuttering because it keeps reoccurring. Stuttering priapism attacks usually get better by themselves, but spontaneously reoccur again in a few minutes or within couple of hours. Some episodes of stuttering priapisms are not painful; however the longer the stuttering priapism lasts the more painful the erections become. Stuttering priapism may go on to develop into a more severe attack of acute priapism.

What is an acute priapism?
This is a sustained painful erection lasting more than a few hours. This type of priapism will often not resolve spontaneously. Acute priapism is normally very painful and is considered a major complication of sickle cell disease. It needs emergency medical attention. Patients often experience episodes of stuttering priapism before an attack of acute priapism.

Why does priapism happen?
Sickled red blood cells block the supply and flow of blood in the penis. Therefore a priapism attack is a sickle cell crisis that is localised to the penis. The sickled red blood cells cause a disruption to the normal flow of blood within the penis. Consequently the penis becomes starved of oxygen and this causes pain and tissue damage within the penis.


Cc mods in the house
Lalasticlala
Ishilove
Mynd

Waoh

Look forward to the promise of everlasting cure:

When no one will say 'I am Sick' and when death will be swallowed up forever- Isaiah 33:24 & Isaiah 25:8.

Until then, let God be your strength and His promises your consolation.

Best wishes.

I hope and pray you get the best advice here bro.....but you still need to go see a specialist.....

I believe your best shot is to consult an experienced doctor. But meanwhile, You can try ice pack to ease the turgidity, aspirin to ease the pain and also to thin the blood so that you can have a free flow of blood in your blood vessels. Good luck as you get a lasting solution.

Please see a Urologist or any other specialist familiar with male reproductive organs, not just a general medical practitioner. May you have peace.