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Nairaland Forum / Nairaland / General / Health / Please Help: The Best Way To Cope With An SS Patient (26611 Views)
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Re: Please Help: The Best Way To Cope With An SS Patient by MrsAnyanwu(f): 2:49pm On Apr 16, 2017 |
kidman96:dont let me lay a curse on u, if this is the way u talk to ur mother, don't bring ur lack of home training to a public forum, u are the one that is frustrated , useless child, I don't blame u, stupid boy, u are the cause of ur own misfortune and frustration |
Re: Please Help: The Best Way To Cope With An SS Patient by bigfrancis21: 3:12pm On Apr 16, 2017 |
WebSurfer: I totally feel your pains and understand where you're coming from. There's a reason behind everything. Trust me. I don't mean to scare you but my aunt (mom's sister) also had a daughter who was SS who she managed and managed her case until she grew up to about 20 or 21 in '96 or '97 and she lost her. You need to see how my aunt cried and cried. It was too painful for her. Some SS individuals are able to make it to adulthood. I remember one teacher in my secondary school in his 40s who was SS and save for the fact that he was very lanky, no one would know he's SS because he seemed very strong and barely missed any day to come to school. 1 Like |
Re: Please Help: The Best Way To Cope With An SS Patient by dand9206(m): 3:17pm On Apr 16, 2017 |
Hi OP, I am truely sorry for what your sis is going through. I know how it feels because I also have someone who is suffering from this. But praise be to God almighty, we have been managing him with different drugs. We have tried Solamin and its combination (cant remember the name), its effective. We have also tried Dioscovite and it seems to be more effective. When on this drug, he barely experience crisis. He plays around and feels happy, thus his happiness making us to be at ease. NB: Dioscovite is taken along side with folic acid, and for solamin i cant remember if its taken with folic acid. I actually feel very sad anytime he is in crisis. You should discuss with your family Doctor concerning Dioscovite or Solamin and its combination. Also, dont forget to take your sister's trouble to God. Life is truely difficult for some and easy for others but in all things, may God always make a way for his creation where there seems to be no way. IT IS WELL |
Re: Please Help: The Best Way To Cope With An SS Patient by bigfrancis21: 3:18pm On Apr 16, 2017 |
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Re: Please Help: The Best Way To Cope With An SS Patient by samhark: 3:31pm On Apr 16, 2017 |
-The only reason she is coming up with frequent malaria is because she is frequently expose to mosquito bites, let her take precautions and should be protected from mosquito bites. -Her dietary must be balanced, and as much must be natural, fruits, vegetables, water should be one of the best. -She must also make sure she is not expoosr to much eat and at same time cold, she should no her limit and avoid too much stress -Then u as members of the family should not see this as a dead warrant, stay by her, love her, care for her and encourage her to do the right tin at the right time, she will be fine. Min while if the present hospital caring for her is not satisfactorily doing their work, please take her to other hospital, hopefully a good general Hospital around u or special centers for patients with SS |
Re: Please Help: The Best Way To Cope With An SS Patient by AdeforJesus: 3:46pm On Apr 16, 2017 |
Call or send text message to me on this number 08076440295.I may be of great help |
Re: Please Help: The Best Way To Cope With An SS Patient by engrjonny(m): 4:01pm On Apr 16, 2017 |
Give the patient C24/7 by Alliance in motion global, contact me on 07038266552
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Re: Please Help: The Best Way To Cope With An SS Patient by BossDanniee(m): 4:07pm On Apr 16, 2017 |
Hello Websurfer, Have you heard of the latest vaccine given to sickle cell patients? Well its called Pneumococcal Conjugate Vaccine also known as Prevnar13 which is produced by Pfizer. This vaccine is used for the prevention of invasive disease and last upto a year without the patient falling sick frequently i.e its taking every year and recommended by a consultant. You can ask your family doctor or consultant about this vaccine. Read More: https://www.drugs.com/prevnar-13.html or send me an email let's discuss. 1 Like 1 Share |
Re: Please Help: The Best Way To Cope With An SS Patient by bejeria101(m): 4:11pm On Apr 16, 2017 |
Its a bit challenging. Im currently dating somebody with it and yestaday she had a crisis and she still called me and was in tears and by her breathing i knw she was in great pain,was heartbroken. I calld afta church today and her voice was hoarse and told me she was in the hospital. Also lost a male friend in 2005 with the ailment,he passed on in his sleep. 1 Like |
Re: Please Help: The Best Way To Cope With An SS Patient by Donselekta(m): 4:47pm On Apr 16, 2017 |
WebSurfer:Kindly find your way to petals fm in Ibadan, ask for Adetoye Omotoso 08023440062. Sickle cell patients can now be cured. Good luck. |
Re: Please Help: The Best Way To Cope With An SS Patient by kidman96(m): 7:55pm On Apr 16, 2017 |
MrsAnyanwu: Hmmm... |
Re: Please Help: The Best Way To Cope With An SS Patient by justeric23: 8:37pm On Apr 16, 2017 |
I have sickle cell anemia and I'm 28 yrs old. these are the things I do to avoid crisis : 1. avoid all forms of cold environment 2.Avoid stressful activities.. but take strolls in the evening just to keep in shape. 3. take LOTS of water to prevent dehydration.. that's a major trigger for crisis 4.eat lots of fruits and vegetables .. they contain anti-oxidants 5.take vitamin b complex tablets daily. 6 take supplements like Nicosan .. jobelyn is an effective and cheaper substitute 7. avoid blood tonics at all costs.. but you can supplement by taking ugwu leaf extract with milk once in a while. 8. pray and stay positive. 3 Likes 1 Share |
Re: Please Help: The Best Way To Cope With An SS Patient by WebSurfer(m): 9:21pm On Apr 16, 2017 |
Thank you all for your recommendations, really appreciate |
Re: Please Help: The Best Way To Cope With An SS Patient by Warrior07(m): 10:20pm On Apr 16, 2017 |
WebSurfer:If you can follow half of the advice you have here your sis would rarely be sick again. I beg you, pls n pls follow these instructions to avoid stories that touch the heart. I feel her pain, I feel yours too. Pls do something. And soon Its well. |
Re: Please Help: The Best Way To Cope With An SS Patient by YetundeOlatunji: 11:44pm On Apr 16, 2017 |
Good evening. Is ur Sister on Hydroxyurea Capsule, Folic acid and Proguanil tablets? I'm a Health Worker working with d founder of the Sickle Cell Foundation of Nigeria. Pls call me on 07038999949. 2 Likes |
Re: Please Help: The Best Way To Cope With An SS Patient by YetundeOlatunji: 11:52pm On Apr 16, 2017 |
[color=#006600][/color] WebSurfer:Pls call me ASAP on 07038999949 |
Re: Please Help: The Best Way To Cope With An SS Patient by Neye1973: 1:04am On Apr 17, 2017 |
I hope u can see this, I am 44yrs, I have lived in and outside Nigeria. You can contact me on 08052244200. First of all she must be ready to fight to stay alive, that means 1. No mosquitoes. The 2 most important thing for an as person is to avoid malaria and to reduce stress. Other things are in between. Also, the age she is now is critical so must be strong and ready to live. I have done it and do is thousands of other people. |
Re: Please Help: The Best Way To Cope With An SS Patient by ozimec(m): 1:45pm On Apr 17, 2017 |
WebSurfer:Brother, God can change your sisters genotype to AA and heal her perfectly. It's very common where I worship and it's free. Testimonies abound. |
Re: Please Help: The Best Way To Cope With An SS Patient by otiadeoye(f): 5:37pm On May 08, 2017 |
Pls register ur sis at lasuth, mercy hospital or luth where they have experts...hematologists...DTS a special n separate dept properly equipped to attend to all cases of sickle cell... Folic acid,drinking plenty water, warm clothes and bcomplex cum asthymin are all normal rituals DT must b taken. Sickle cell isn't avdeath sentence, carriers can b free Frm sickness and pains, live a normal regular long life than non carriers. It is well dear, ur love and support will give her more strength n positive life. Stay strong. |
Re: Please Help: The Best Way To Cope With An SS Patient by WebSurfer(m): 12:44pm On Aug 31, 2017 |
Neye1973: Thank you.. We finally got it done by God's grace. Was recommended to a place in the East where a traditional man removed some things from her body like a surgery, something our supposed hospitals couldnt detect all these while. Spent around 130k for the whole thing. Since then, everything stopped and she is perfectly ok now according to her, the last time i saw her was one of the happiest mood i ever saw in a long time. Thanks and God bless you all. |
Re: Please Help: The Best Way To Cope With An SS Patient by CaraJewel(f): 1:38pm On Aug 31, 2017 |
don't go from a warm place to a cold place so fast. it triggers the crisis |
Re: Please Help: The Best Way To Cope With An SS Patient by pinky85: 8:17pm On Aug 31, 2017 |
WebSurfer: Hi, can you please go into details on what was done for her. Im 47 yrs old and many others like myself know modern medicine has failed us before the advent of bone marrow transplant. |
Re: Please Help: The Best Way To Cope With An SS Patient by WebSurfer(m): 8:29pm On Aug 31, 2017 |
pinky85: Good evening ma. Yes truly modern medicine and doctors failed.. All they do is keep diagnosing drugs here and there. I heard about the born marrow transplant too but what was done to my sister was different.. The traditional man removed something that looks like lumps from beneath her breast with herbs to take for a short while for quick healing. No more sickness since then.. I cant really say much because my dad was the one who took her there from Ughelli in delta to Enugu to get it done 1 Like |
Re: Please Help: The Best Way To Cope With An SS Patient by bman2003: 5:41pm On Apr 05, 2019 |
Solamin
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Re: Please Help: The Best Way To Cope With An SS Patient by icybeth(m): 11:17pm On Jul 23, 2019 |
WorkSmartEdu:please how do I get the original one for my daughter that is a year and five months |
Re: Please Help: The Best Way To Cope With An SS Patient by icybeth(m): 11:47pm On Jul 23, 2019 |
WebSurfer:please sir, ask your dad where precisely. my daughter is suffering |
Re: Please Help: The Best Way To Cope With An SS Patient by WorkSmartEdu: 9:49pm On Aug 04, 2019 |
icybeth: Are you based in Nigeria or abroad. If in Nigeria, go to dm your telephone number and I will call you or sign post you to who to call. All the best! |
Re: Please Help: The Best Way To Cope With An SS Patient by icybeth(m): 8:04am On Aug 05, 2019 |
WorkSmartEdu:I base in Nigeria, here is my number 08172700034. |
Re: Please Help: The Best Way To Cope With An SS Patient by Mariangeles(f): 10:36am On Aug 05, 2019 |
WebSurfer:How is your sister ? I hope she's feeling much better now |
Re: Please Help: The Best Way To Cope With An SS Patient by WebSurfer(m): 1:12pm On Sep 06, 2019 |
Mariangeles:Yes thank you. She has been perfectly okay since then. Just little not so serious illness few times |
Re: Please Help: The Best Way To Cope With An SS Patient by WebSurfer(m): 1:13pm On Sep 06, 2019 |
icybeth:Sorry i did not get this message in time. Are you still active ? |
Re: Please Help: The Best Way To Cope With An SS Patient by sp2002(m): 2:04pm On Sep 06, 2019 |
holarcarny:in addition to this, she should avoid anything that will stress her She should always sleep under mosquito net to prevent her from malaria She should always take fruits. N.B my last sin of 5yrs is also an SS. Speaking from experience |
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