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Inspirational Tweets Of People Living With Sickle-Cell Disease. - Health (2) - Nairaland

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The Oldest Person With Sickle - Asiata Onikoyi-laguda / Misconceptions About People Living With Sickle Cell Disease / The Facts And Myths Of Sickle Cell Disease (2) (3) (4)

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Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Les: 10:50pm On Jun 20, 2013
Shout out to ma real homie, Ivan Bosah of Delta state, do me a favour as d only child, get an AA Hot babe, get d babe preggy and continue ur lineage. How I wish ur dad's wealth would replace one of those 'S' with an 'A'.... But remember, we are still the ambassadors of christ, no matter wat!

1 Like

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Nobody: 10:56pm On Jun 20, 2013
Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.

What are u saying? Lets be pragmatic abeg. How many centres in Nigeria can you do chorionic villus sampling + genetic testing? That's textbook stuff. Cvs ko, git ni. Stop misinforming people.

7 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Artistree: 11:00pm On Jun 20, 2013
Bay1970, after the scan @ 12weeks and d foetus is found 2be a potential sufferer, what next, u abort it & try again?
Even if am on a hot seat, my final answer is NO! I can't marry someone with d SC gene if I'm a carrier! My own type of love takes Vitamin A for bright eyes...am AA tho but have seen what turmoil these people go thru when they've crisis...

5 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Biim: 11:07pm On Jun 20, 2013
Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.
Not again, can't we just stick to AS not marrying AS or SS it is safer that way.
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by qualified(f): 11:12pm On Jun 20, 2013
Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.
story!
Pls nobody shld listen to ds deceit. I had two nephews wit sickle cell. I have lost one, and i can pay anything to make sure d remaining one stays crisis-free and strong. Its a very terrible situation.
My sis n husband actually did genotype test b4 marriage. Trust our Nigerian labs! Whn they had their 2nd child n he was SS ( RIP my little prince), they went back for test n discovered d former test was wrong. Now, we can do anything to 'change' d other boy's genotype n stop him frm having all d pains/crisis.
Sorry for my long story, but plss SS + SS is NO!
AS + AS = NO!

3 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by qualified(f): 11:20pm On Jun 20, 2013
annoymous:

What are u saying? Lets be pragmatic abeg. How many centres in Nigeria can you do chorionic villus sampling + genetic testing? That's textbook stuff. Cvs ko, git ni. Stop misinforming people.
dont mind d clown! We are talking real issues, he is suggesting textbooks principles.
So d couple ll willingly enter d union n continue wit tests n subsequent abortions until they test shows a baby without SS? Hm, ds is trying God, and no man made test is 100% Besides i have not seen those tests u mentioned in Nigeria.
Pls pals, SS + SS = NO!
I'm talking frm experience
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Bay1970(m): 11:20pm On Jun 20, 2013
AS/AS should not stop a marriage period. Having a child is not all we gain from being married. Yes, there is a lot centers in Nigeria that do CVS, you need phone numbers I will provider.

3 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Bay1970(m): 11:22pm On Jun 20, 2013
qualified:
dont mind d clown! We are talking real issues, he is suggesting textbooks principles.
So d couple ll willingly enter d union n continue wit tests n subsequent abortions until they test shows a baby without SS? Hm, ds is trying God, and no man made test is 100% Besides i have not seen those tests u mentioned in Nigeria.
Pls pals, SS + SS = NO!
I'm talking frm experience

in Lagos alone we have over 4 centers that do CVS
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Nobody: 11:29pm On Jun 20, 2013
Dude dude,calm down! Pls be reasonable! I don't like insulting pple on NL but am sure tempted to! One question, if this CVS stuff actually works,then what happens 2d baby? U abort it? 50% is way too high α chance! Just avoid it all 2geda! Be sensible pls
Bay1970: AS/AS should not stop a marriage period. Having a child is not all we gain from being married. Yes, there is a lot centers in Nigeria that do CVS, you need phone numbers I will provider.

2 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Nobody: 11:30pm On Jun 20, 2013
Nope,he is α bigot
Fash20: ar u a human being
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Bay1970(m): 11:33pm On Jun 20, 2013
Life is not one way thing, if you happen to marry a AS for LOVE, you have an option. I have helped 2 - 3 Nairaland ladies with CVS in Lagos, their babies are fine and deeply in love with their AS hubbies. Life is give and take not one way thing.
Guys cool off, life is too short.

1 Like

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by crisycent: 11:39pm On Jun 20, 2013
I lost a friend to sickle cell 3 years ago. Heard there is a cure for it now; bone marrow transplant. To my man Oghenekaro Ifoni a.k.a Niro Brown R.I.P

1 Like

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Bay1970(m): 11:41pm On Jun 20, 2013
My last post on this
I respect everyone feelings on this issue.
I am only trying to provider an option for AS/AS in the house.

OB/GYN

3 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by geekybabe(f): 11:45pm On Jun 20, 2013
Bay1970: AS/AS should not stop a marriage period. Having a child is not all we gain from being married. Yes, there is a lot centers in Nigeria that do CVS, you need phone numbers I will provider.

Can u just making noise here? What is wrong with u? How many babies wud u abort to get a non SS foetus? Is marrying someone a do or die affair? Do u knw d trauma and pain pple who with SCD go tru? Stop misleading pple for Heavens sake!! Abortion has a whole lot of trauma and pain, physically and psychologically.!
AS/AS marriage is just pure selfishness! And yes, having children is part of why God ordained marriage..

1 Like

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 11:58pm On Jun 20, 2013
Bay1970: Being AS and having AS wife/husband is not end of the world, it gives you only 25% of having SS(sickle cell), 25% of AA and 50% of AS. Can it be avoided if posible? yes, but education is only the answer. If you love your AS boy/girl friend, do not let AS stop you from having someone you really love as a life partner; you might end up having a bitch with AA and in hell for the rest of your life. If you are AS with AS wife/husband, please remember to do CVS on every pregency. CVS will detect SC at 12 wks 100%.
This is the last advice I will want anybody to take.
IT IS PURE SELFISHNESS ON THEE PART OF AS/AS PARENTS TO MARRY AND GAMBLE ON NOT HAVING A SS.
The most painful part is that when that SS child grows and finds out that it was because of "Love" that he is suffering PAINS, TRAUMAS AND STIGMA almost every other day of his or her life, how will s/he feel.
Of course it is not the parents or the AA or AS siblings that suffers these things. It is that "Unfortunate" SS child that suffers it.
SAY NO TO AS/AS MARITAL UNION.
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 11:59pm On Jun 20, 2013
geeky_babe:

Can u just making noise here? What is wrong with u? How many babies wud u abort to get a non SS foetus? Is marrying someone a do or die affair? Do u knw d trauma and pain pple who with SCD go tru? Stop misleading pple for Heavens sake!! Abortion has a whole lot of trauma and pain, physically and psychologically.!
AS/AS marriage is just pure selfishness! And yes, having children is part of why God ordained marriage..
Thank You.
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:02am On Jun 21, 2013
Bay1970: My last post on this
I respect everyone feelings on this issue.
I am only trying to provider an option for AS/AS in the house.

OB/GYN
THIS POSTER IS THE VERY TYPE OF PERSON THAT WILL COME AND CONSOLE YOU BY SAYING, "Don't Worry, God knows the best".
PLEASE AS/AS MARITAL UNION IS A NO-NO. Don't do it, the pain and stigma that we Warriors suffer is not enough reason to Gamble on LOVE.
I guess as a Obygyn, you are sourcing for customers. Goodluck with playing kalo-kalo with the future of unborn babies, whose AS/AS parents will listen to you.

3 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Sirdayor(m): 12:03am On Jun 21, 2013
If everyone can identify the most important reason why he or she is getting marry, then issue of genotype or hiv status will not be a problem.

2 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:05am On Jun 21, 2013
Bay1970: Life is not one way thing, if you happen to marry a AS for LOVE, you have an option. I have helped 2 - 3 Nairaland ladies with CVS in Lagos, their babies are fine and deeply in love with their AS hubbies. Life is give and take not one way thing.
Guys cool off, life is too short.
I guess you one of those that was tweeted about.
"Pay attention: some of those same folks espousing wisdom and claiming God, couldn’t care less about # worldSickleCellAwarenessDay"
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by funshiba(m): 12:05am On Jun 21, 2013
Sensitive topic for me.

Just few months back.... My ex and I broke up due to genotype issues....She is SS and im AS.... till now she hasnt forgiven me...we were meant to get married this year. But I guess I made a decision for us cos she couldnt bear losing me....

The most painful decision I ever made cos I love here dearly but I guess common sense has to prevail....I pray she understands someday and will forever be happy...

6 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:08am On Jun 21, 2013
Sirdayor: If everyone can identify the most important reason why he or she is getting marry, then issue of genotype or hiv status will not be a problem.
universally, one of the reasons to marry is PROCREATION.
Please do not encourage people to bring unnecessary sufferings to that Innocent Unborn Child.
We that live with SCD know what it really means, you can only imagine. Behind those smiles, there may be pains going on.
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:09am On Jun 21, 2013
funshiba:

Sensitive topic for me.

Just few months back.... My ex and I broke up due to genotype issues....She is SS and im AS.... till now she hasnt forgiven me...we were meant to get married this year. But I guess I made a decision for us cos she couldnt bear losing me....

The most painful decision I ever made cos I love here dearly but I guess common sense has to prevail....I pray she understands someday and will forever be happy...

You made the right choice. May God be with you and her. Amen.
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Nobody: 12:13am On Jun 21, 2013
My BFF is one of them. I love her so much and have always been there for her, not in a pitiful way. I understand her pains during crisis. She ain't got the usual Sickle cell figure or look, she is very beautiful and in good shape

One thing that scares me is knowing that one day she may be gone. Yeah I know we all must die I one way or thee other but....

God bless them and give all of em the strength to bear the pain and keep fighting. Knowing the amount they spend on medical bills at one the best hospitals in Los Angeles makes me wonder how the poor or those from average homes go through it all.

I hate hospitals but for her I've spent a few nights at the hospital to keep her company.

Please marry right!

4 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by joshuaidibia(m): 12:18am On Jun 21, 2013
And 2 all dos reading this tread,dat re SC as myself. I'm glad i ws born. Bt dad,WHY?

2 Likes

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Nobody: 12:22am On Jun 21, 2013
joshua idibia: And 2 all dos reading this tread,dat re SC as myself. I'm glad i ws born. Bt dad,WHY?

It's ok man. S.C or no S.C life is a bittch. So live your life and enjoy your moments.

1 Like

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Pleasantme: 12:24am On Jun 21, 2013
funshiba:

Sensitive topic for me.

Just few months back.... My ex and I broke up due to genotype issues....She is SS and im AS.... till now she hasnt forgiven me...we were meant to get married this year. But I guess I made a decision for us cos she couldnt bear losing me....

The most painful decision I ever made cos I love here dearly but I guess common sense has to prevail....I pray she understands someday and will forever be happy...

I was really touched by ur post and all I can say is 'God knows best' she mite nt understand nw but I bet she wud b forever grateful 2u for d bold step in d nearest.future. N.B; next tym confirm and resolve genotype ishs b4 dstart of an affair so it doesnt seem like u r messing wit emotions....

1 Like

Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by queenbinteo: 12:25am On Jun 21, 2013
Happy belated birthday to us OP!! I had an amazing #WSCD2013 on BBM,FB n twitter. Let's chat on fb over the weekend.loads of hugs
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:34am On Jun 21, 2013
queen binte o: Happy belated birthday to us OP!! I had an amazing #WSCD2013 on BBM,FB n twitter. Let's chat on fb over the weekend.loads of hugs
I will keep fighting, especially for those I fare better than.
FB this weekend.
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:46am On Jun 21, 2013
I have Sickle Cell Disease and I would love for the world to be educated on this disease.... #WSCD2013
Re: Inspirational Tweets Of People Living With Sickle-Cell Disease. by Abali2013: 12:47am On Jun 21, 2013
#WSCD2013
Because we care, because it matters. Sickle cell is the word. Keep tweeting.

1 Like

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