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Two-year-old Boy Diagnosed With Cloves Syndrome - Health - Nairaland

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Two-year-old Boy Diagnosed With Cloves Syndrome by babygirlfl: 11:04am On Jul 05, 2013
Aidan Jackoviak Smith was born prematurely with a growth on his face and at 3-weeks-old he started to suffer regular fits that left him brain damaged

Doctors remain unable to diagnose him but hope to work out what is wrong with him by a process of elimination

They now suspect he suffers with CLOVES Syndrome, a rare condition that causes blood vessel, skin and spinal abnormalities

A two-year-old boy who suffers with a severe facial deformity and may never learn to walk or talk has baffled doctors with his undiagnosable condition.

Despite suffering with a number of distinct symptoms, medical experts are unable to pinpoint exactly what is wrong with Aidan Jackoviak Smith.

His mother, Vikki, 40, says that specialists are now forced to work out what is wrong with him by a process of elimination as test after test comes back negative.


At first they thought it was Proteus Syndrome, but after a biopsy six months ago, the results came back negative,’ Vikki told ITV’s This Morning. ‘But now they think it might be CLOVES syndrome.’

Proteus Syndrome is a genetic condition that John Merrick, the Elephant Man, suffered from.

CLOVES Syndrome is also a genetic condition and causes blood vessel, skin and spinal abnormalities.




Aidan was born eight weeks prematurely weighing 4lb 10oz on Boxing day 2010 after an uneventful pregnancy.

He was immediately whisked away by nurses at Newcastle’s Royal Victoria Infirmary because he was premature.

Vikki and husband Karl, 35, had no idea that their newborn son was in fact very ill with a rare condition.

Aidan had been born with a growth on his face, back and leg and three weeks later he started to experience

seizures with alarming regularity. Doctor then broke the news that he had suffered brain damage.

‘That’s when it hit home,’ said father Karl. ‘The enormity of it hit me when the words ‘brain damage’ were mentioned.

'We realised he might never walk or talk and were worried he would never recognise us. It’s just terrifying.’

The parents, who also have a son called Daniel from Vikki's previous marriage, were also overwhelmed when doctors gave them CPR lessons in case Aidan stopped breathing.

‘You suddenly realise the responsibility of the little life you are looking after,’ explained Karl.

http://www.dailymail.co.uk/health/article-2356227/Whats-wrong-son--Two-year-old-boy-leaves-doctors-baffled-rare-undiagnosable-condition.html
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by megareal: 12:38pm On Jul 05, 2013
Hmmm. You go fear mysterious illness. As a typical Nigerian, I advise make dem carry am go church.

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Flygerian1(m): 12:39pm On Jul 05, 2013
WTF! shocked
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 4:53pm On Jul 05, 2013
I pray God help the little cutie

3 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Policewoman(f): 4:57pm On Jul 05, 2013
Na wah o. God help us.
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by otijah(m): 4:57pm On Jul 05, 2013
I hav a feeling dat he destined for greatness. He shall be a great man. Say amen by liking d post

25 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Decryptor(m): 4:58pm On Jul 05, 2013
Why is it that whites are the ones who usually suffer from these ailments more frequently than Africans? Rare diseases with weird names
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by effisyman: 4:58pm On Jul 05, 2013
May God lay hands on him and heal him.

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 4:59pm On Jul 05, 2013
there is nothing to big for God that He cant handle.all i want to say is there is hope.
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Lakayanah: 5:01pm On Jul 05, 2013
What I don't understand is that oyinbo countries are so clean there house spotless they have all the latest gadgets to clean their environments their water coming from the taps defines what they taught us in primary school about the characteristics of good water. Why is it that all the strange sicknesses are from them. It's a puzzle am yet to unravel.

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:03pm On Jul 05, 2013
effisyman: May God lay hands on him and heal him.
i thought god created him that way in the first place? Why do we need god to heal again?

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by nifemi25(m): 5:03pm On Jul 05, 2013
White men with good thinking. If to say na nigeria dem go say na one old woman for village do am.

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by fitzmayowa: 5:04pm On Jul 05, 2013
Na wa ooo different kind of syndrome

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:04pm On Jul 05, 2013
megareal: Hmmm. You go fear mysterious illness. As a typical Nigerian, I advise make dem carry am go church.
MUMU!

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:04pm On Jul 05, 2013
another God's failure
time for science to step in

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:05pm On Jul 05, 2013
eeyah! And the parents are smiling...what peace & calm. If na here the parents will be frowning and boning as if the world is falling. Pray its corrected quickly.

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Lifebender(m): 5:08pm On Jul 05, 2013
Decryptor: Why is it that whites are the ones who usually suffer from these ailments more frequently than Africans? Rare diseases with weird names
grin
Decryptor: Why is it that whites are the ones who usually suffer from these ailments more frequently than Africans? Rare diseases with weird names

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by danthamccoy(m): 5:10pm On Jul 05, 2013
Decryptor: Why is it that whites are the ones who usually suffer from these ailments more frequently than Africans? Rare diseases with weird names
Who said? The difference is that the African kid will probably never be diagnosed correctly and/or treated as a freak and/or abandoned and/or never make it to that age sef.

3 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Lifebender(m): 5:10pm On Jul 05, 2013
Decryptor: Why is it that whites are the ones who usually suffer from these ailments more frequently than Africans? Rare diseases with weird names
it is because they do not take egun magadon,oshomo,agbo jedi,opa eyin,ota waiwai made by baba and co.. grin

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by AbuMikey(m): 5:12pm On Jul 05, 2013
There's a guy at Ekpoma(AAU second sch) with same problem!!! But this caucasian's is worse ooo! shocked
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by ManTiger(m): 5:14pm On Jul 05, 2013
otijah: I hav a feeling dat he destined for greatness. He shall be a great man. Say amen by liking d post
begging for likes on NL makes you no differ from street beggars.

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by premlove(m): 5:15pm On Jul 05, 2013
Chinese product always dey get comma
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:15pm On Jul 05, 2013
Decryptor: Why is it that whites are the ones who usually suffer from these ailments more frequently than Africans? Rare diseases with weird names
Britain has the highest rate of genetic birth defect, some suggests that it is as a result of the industrial revolution. Most of them were exposed to dangerous chemicals and particles during this period that damaged some chromosomes.I feel sorry for the boy though.

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Lakayanah: 5:23pm On Jul 05, 2013
I just hope sai oyinbo never start to mutate oh.
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:24pm On Jul 05, 2013
ALL Parents should learn CPR. Dont wait until your child is diagnosed with something.

This poor kid looks like the product of a GMO diet. undecided I pray doctors can help him.
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by ninja4life(m): 5:28pm On Jul 05, 2013
otijah: I hav a feeling dat he destined for greatness. He shall be a great man. Say amen by liking d post
abeg how much oga seun dey pay for liked post.oya make me no carry last abeg like my post ocheesycheesy

2 Likes

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:33pm On Jul 05, 2013
Lakayanah: What I don't understand is that oyinbo countries are so clean there house spotless they have all the latest gadgets to clean their environments their water coming from the taps defines what they taught us in primary school about the characteristics of good water. Why is it that all the strange sicknesses are from them. It's a puzzle am yet to unravel.
whites are mutants,they mutated from blacks thousands of years ago,so their genetic make up still has some major flaws unlike blacks that has the genetic ability to counter many abnormalities,but they ll never talk about it

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by johnstar(m): 5:36pm On Jul 05, 2013
9jadelta: another God's failure
time for science to step in
which God's failure, u weed U knw read well, born prematurely undecided a$$Hole.. Make God knw punish u der o

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by vivaciousvivi(f): 5:39pm On Jul 05, 2013
omg omg! I hope he is not in permanent pain! Ahhhh...after suffering for 9 months. God please, send down a miracle for this child.

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by Nobody: 5:42pm On Jul 05, 2013
igboezue: whites are mutants,they mutated from blacks thousands of years ago,so their genetic make up still has some major flaws unlike blacks that has the genetic ability to counter many abnormalities,but they ll never talk about it

Your point being the blacks with mutations are left to die thus leaving only the strongest ones to procreate. It has nothing to do with years old genetics.
Re: Two-year-old Boy Diagnosed With Cloves Syndrome by oyincute: 5:55pm On Jul 05, 2013
Just feel an undeniable pity for this poor little boy...

1 Like

Re: Two-year-old Boy Diagnosed With Cloves Syndrome by TVTKOKO(m): 6:00pm On Jul 05, 2013
smothly: I pray God help the little cutie
amen o but na evrything dey cute 4 una face?

1 Like

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