paradigmshift:
that's crazy. Is there no way to go about it not to have SS kids ?

So far no way except to stop the stupid love or an AS should marry an AA

Bone marrow transplant is the cure, just that it is extremely expensive any regular joe can't afford it, what pains me the most is the stigma, and Alot of ignorant folks on this thread, one idiot even said they don't live past 30, what do you know? Ignorant fvcks, sickle cell or not, those warriors are stronger than any average person, because what they live through as a way of life could kill you, even with your AA genotype, so don't assume you're better than them, cuz you're not.

ikeno:
Living with sickle cell anemia is not a joke especially during the crisis phase.the pains are so excruciating that so many thoughts of ending it will be going through one's mind.It deprive one from having a normal lifestyle.

Taking folic acid regularly and some other drugs,going for check-up, getting admitted if the crisis is severe, eating lots of veg,not doing anything that is strenuous because of short of breath.

It's very advisable to know one's genotype and your partner.it's not only the child that will suffer even the parent too.they will spend lots of money, sleepless nights both at home and in hospital.they will be very worried and unhappy.

That's for parents who cares.

FireUpNow:

So far no way except to stop the stupid love or an AS should marry an AA

yeah understandable.. some cases where the result was not done properly, what will one do? I hear there are ways now but it cost Money

SLOVFO:
Outside divine intervention, does it mean that this disease has no cure?

It's not a disease, it's a cell deformity
Doesn't need cure, needs correction

SLOVFO:
Outside divine intervention, does it mean that this disease has no cure?

There is another one out it's herb Sha imported someone bought it for his kids since then no crisis am planning to try it out although it cost

Waterbear:

It's not a disease, it's a cell deformity
Doesn't need cure, needs correction

But it's not easy nah like this am in pain but I don't want any body to know it hurts

SLOVFO:
Outside divine intervention, does it mean that this disease has no cure?

It's not a disease, it's a cell deformity
Doesn't need cure, needs correction

ContinueContinue...

I see one with big breast.

Wishing them all a quick recovery.

Monaboo:
It is well. I feel their parents should look for way to help them for the solution is available.

At least I know of 5 Nigerian Sickle Cell Patients that have been cured and their Genotype changed to AA.

One was even an AS woman in her 40's. She got healed and her genotype changed to AA

All these are real. No be say dem tell me. No be say dem even do surgery o.

If u can understand that Sickle Cell Disease takes it's root cause from your CELL, you case is half solved.

Nigerians are getting CURED of Sickle Cell Disease but if u no know, u no go know.

Please can you shade more light.

GLeesMODEL:
Excitement As Hoplite Foundation Holds Hangout For Persons Living With Sickle Cell In Abuja


https://www.youtube.com/watch?v=nNCNa2cqEa4

A non-governmental organisation, Hopelite Sickle Cell Foundation has successfully held its 2022 get-together for persons living with sickle cell tagged "The Warriors Hangout".

The event took place at Indigo restaurant Abuja in collaboration with Film Avenue, Bkeo Foundation, Amstel Ultra and Indigo.

The founder of the foundation, Anna Ochigbo said the aim is to bring persons living with the condition to come together, have fun, laugh and network.

According to her, she seeks to create a sickle cell community to give them hope and mobilise support for them.

She expressed regret that people living with sickle cell have not been given adequate care in the society even as they continue to face discrimination in the society.

While expressing gratitude with the number of participants that came out for the hangout, Ms Anna Ochigbo said members of the community held a far-reaching discussion that will further help in bringing succour to them.

About 97 sickle cell warriors were in attendance in addition to sickle cell volunteers and advocates.

They wielded placards with inscriptions such as "Stop stigmatisation and discrimination towards sickle cell warriors", "Sickle cell warriors deserve public health insurance" and more.

There was so much fun time, entertainment, refreshments and exchange of gifts items.

One of the sickle cell warriors, John Ekeneme expressed delight with the opportunity to come and network and have fun with fellow warriors, saying more opportunities like this will go a long way in supporting them.

Anna Ochigbo said subsequent editions of the hangout will have a larger pool of participants from across various sectors in the Nigerian society.

https://www.abujapress.com/2022/12/excitement-as-hoplite-foundation-holds.html

Good but what do you do for them when they have crisis? There are many who is not aware of the outings. How do you mobilize those in rural communities

KingLennon:

Medically, No sir but it can be cured Godically (◔‿◔)

Have you seen someone cured through that

paradigmshift:
yeah understandable.. some cases where the result was not done properly, what will one do? I hear there are ways now but it cost Money

In that case I will suggest that we shouldn't use the result from one lab or hospital to judge againits better to redo the test in another different place entirely to avoid premium tears

Monaboo:
It is well. I feel their parents should look for way to help them for the solution is available.

At least I know of 5 Nigerian Sickle Cell Patients that have been cured and their Genotype changed to AA.

One was even an AS woman in her 40's. She got healed and her genotype changed to AA

All these are real. No be say dem tell me. No be say dem even do surgery o.

If u can understand that Sickle Cell Disease takes it's root cause from your CELL, you case is half solved.

Nigerians are getting CURED of Sickle Cell Disease but if u no know, u no go know.

Please how throw more light I need your contact please

paradigmshift:
how successful is this? Just hearing it for the first time

It is 50/50 surgery but u need a bone marrow donor and it's also expensive 5m excluding other things it could be more than tho

TalkTalkTwins:
Their parents should have been invited too, so they see what they're putting their kids into

You might not leave real estate or shares for your kids, but try as much as possible not to leave them with sickle cell

We're all born to die, but we have to first live

Òrò Òmùgò

What kind of unfounded accusation is this,who discriminate and stigmatize sickle cell patients. That has never been seen rather there are given preferential treatment

DrRasheed:
Wow adorable.. though I trust anaemia free Nigerians are there for the free delicacies

Funny Guy

koby86:
What kind of unfounded accusation is this,who discriminate and stigmatize sickle cell patients. That has never been seen rather there are given preferential treatment

discrimination is wrongly used here, i could remember when we were in sce/school then, the one in my class was always given a preferential treatment, ignorantly we wished we were like her, she died two weeks ago.

Blake755:

It is 50/50 surgery but u need a bone marrow donor and it's also expensive 5m excluding other things it could be more than tho

since it's 50:50, then it's not guaranteed then.. wow

God1000:
Raising awareness is good.


But I'm disappointed there hasn't been vaccines to treat this ailment despite the advances in medicine.

People should know their genotypes before getting married to avoid having children with sickle cell disease.

Don't allow the love you have for your partner push you into making silly decisions

I know of someone who switched to herbal treatments and saw a very big change,not until she stopped, claiming that her Alfa did special prayers for the boy and dat He is very fine now,that Using the medicines will be like doubting the good work of God in the boy's life
The pikin don die so,the mama kwa don die,she couldn't not manage loosing her only two sons to the diseases.
This Is one sickness that would stress one to the point of making your money seem irrelevant.
The husband is now left to train the remaining two daughters who luckily are free from the sickness all by himself.
This disease pass love oo,but some people no just wise at all.

paradigmshift:
since it's 50:50, then it's not guaranteed then.. wow

Nothing in this life is guarantee shit happens

PHZADDY1:
Know your genotype today and stop doing I love you I love you

or God will change it

And our PHD holders can not research on the this, I think we should invest more on our native medicine.

paradigmshift:
do you mean there is technology to make sure they don't have SS genotype kids?

YES it's called Gene therapy but it's NOT CHEAP though..

torqque7:


YES it's called Gene therapy but it's NOT CHEAP though..

is it done in Nigeria or overseas?

paradigmshift:
is it done in Nigeria or overseas?

Gene therapy is f**king expensive more than anything

paradigmshift:
is it done in Nigeria or overseas?

Nigeria..Abuja and Lagos I'm sure of,don't know of East sha.That shit is expensive sha between 4-6m

Learn from others mistake.
Dont fall into the same pit of headache.