Blake755:

I have used it that's why am saying

And my daughter is still using it. It's been more than two years she have not been admitted and she has less crisis since she started taken it, ever since we abandoned paludrin and others we have rest round about... to God be all the glory.

Effybaba:
My brother I know your pain and I'm glad to let you know that I have a syrup I have been giving my daughter and she has not experienced crisis since we have been giving her the syrup. Contact me

Thank you very much sir. I'll be very glad to know about the syrup please mail me on ohgeebee95@gmail.com as the email associated with this account is no more. Thanks.

sakbio:
U can manage them with some steps such as registered them in a good teaching hospitan or any govt hospital that is closer to you. Also, they need to manage any sort of stress either from exam preparation or daily hassles, they should manage Thier time without rushing. They should avoid malaria that is sleeping under mosquito nets. Also u they should be taking enough water and encourage to eat balance diet and enough fruits. Lastly they should reduce all the strenous activities such as playing football but encourage them to do lesss strenous exercise. Let them be going to clinic regularly to check their FBC and they should not be exposed to extreme weather condition either rain or cold . God will be with them.

Amen. Thanks for input. I really appreciate it.

Tolupage:


Yemike, I understand your pain and a big thank you for the continual support. Here are my thoughts as someone who's SS.

1. Help them cultivate the habit of takin their routin drugs, folic acid, bco and paludrin. Truthfully we don't like taking drugs and once one is healthy, we most times forget about them.

2. Avoid stress by all means. Physical, mental, emotional and psychological. Heartbreak from a babe can land one in hospital.

3. Never strain your body. exercise, sport and labor can be detrimental, they all must learn to do these with caution and within limit. I'm not asking they become pampered and spoilt tho.

4. Get them supplements: there are lots of supplement out there can can really boost immune system and help each of them live really healthy. Find one of those. Some supplement don't work for people tho, so find the right one.
I know a lot of people recommend Hydroxyurea, but I'd say it should be your last resort unless recommended by your doctor.

5. Love them with all you've got and show it, they'll need it.

6. Avoid mosquito bites by all means. Mosquito nets should be encouraged.

7. Teach them independence, they'll need it. People no too send you. Once one begin to fall sick too frequently they'll eventually get tired... Don't blame them too.

8. Keep first aid drugs around at all times, PCM, Diclofenac, Aboniki.

9. Don't let their battles drain you, you also deserve a good life

10. Help them understand they can live well, and be the best version of themselves. They must cultivate strong desire to live and enjoy life.

11. Hydration is non negotiable. Minimum 7 sachet of water daily. Regular cup shouldn't be less than 10.

12. Avoid extreme weather. Cold? Wear your cardigan. Hot? Loosen up.

Lastly Make dem sabi God oooooooooooo, cause na him dey run things.

Thank you so much for this. God will continue to bless you.

femi4:
But why your parents continue to bring kids to suffer in this world is what I don't understand

No 3, 4, 5- SS

Well, they don't know they're SS from the beginning.

Yemike:

Well, they don't know they're SS from the beginning.

So unfortunate

I sincerely appreciate all your contributions. Thank y'all.
Sorry for the late reply, I've been having issues with my phone. Thanks.

Dear,
Be strong and be hopeful, because this challenge can be managed.

1. They should take lots of water daily, insist on this please.

2. Watch their diet, fruits and lots of vegetables are compulsory. The blood must boosted to avoid any drop in their PCV.

3. Avoid any hard labor or anything that would trigger pains.

4. Keep the environment clean and void of mosquitoes. They must sleep under the net.

5. They must take routine drugs like victamin C, B complex, folic acid, Amino acids, Ciclavite, Hydroxyurea (this is a wonder drug that reduces crises) and regular anti malaria treatment.

6. Do monthly or bi-monthly hospital check up for Full blood count, malaria etc

7. Register for an HMO (if you are in Lagos, get Ilera Eko health insurance scheme to lower the cost of health bills)

Note: visit a specialist doctor for medical advice and prescriptions.

If you follow the above routines they would be healthy and live normal lives.
Sickle cell is not a taboo! Stop stigmatizing warriors! They are normal people and most of the time, they are more intelligent that these mofos typing rubbish here.


Ignore the bitter people here who are looking for whom to dump their vile on, you asked for help and they have none to offer, instead of them to Waka pass, they rather pour their frustrations on others cos they are like their father, the devil whom is roaming about like a roaring lion, seeking whom to devour.

leo22:
Dear,
Be strong and be hopeful, because this challenge can be managed.

1. They should take lots of water daily, insist on this please.

2. Watch their diet, fruits and lots of vegetables are compulsory. The blood must boosted to avoid any drop in their PCV.

3. Avoid any hard labor or anything that would trigger pains.

4. Keep the environment clean and void of mosquitoes. They must sleep under the net.

5. They must take routine drugs like victamin C, B complex, folic acid, Amino acids, Ciclavite, Hydroxyurea (this is a wonder drug that reduces crises) and regular anti malaria treatment.

6. Do monthly or bi-monthly hospital check up for Full blood count, malaria etc

7. Register for an HMO (if you are in Lagos, get Ilera Eko health insurance scheme to lower the cost of health bills)

Note: visit a specialist doctor for medical advice and prescriptions.

If you follow the above routines they would be healthy and live normal lives.
Sickle cell is not a taboo! Stop stigmatizing warriors! They are normal people and most of the time, they are more intelligent that these mofos typing rubbish here.


Ignore the bitter people here who are looking for whom to dump their vile on, you asked for help and they have none to offer, instead of them to Waka pass, they rather pour their frustrations on others cos they are like their father, the devil whom is roaming about like a roaring lion, seeking whom to devour.

I sincerely appreciate your input. Thanks.
Long live our champions

Yemike:

I sincerely appreciate your input. Thanks.
Long live our champions

Also, check out sickle cell foundations and NGOs in your area, a lot of them gives support, free drugs and counselling.

Check out this foundation in surulere for example:
https://instagram.com/samiupdate?igshid=MmVlMjlkMTBhMg==

Effybaba:
My brother I know your pain and I'm glad to let you know that I have a syrup I have been giving my daughter and she has not experienced crisis since we have been giving her the syrup. Contact me

What's the name of the syrup please.
Let me give it to my uncle's daughter who's suffering from crisis now.

leo22:


Also, check out sickle cell foundations and NGOs in your area, a lot of them gives support, free drugs and counselling.

Check out this foundation in surulere for example:
https://instagram.com/samiupdate?igshid=MmVlMjlkMTBhMg==

I'll do that, thanks.
My phone cannot open that link but I'll do more research.

Acidosis:


F00lish man. My parents did not abandon their children to die of sickle cell. They did not shift their responsibility to the first child of the family either.

Thank your stars I'm not Nigeria's president, wicked parents like you will spend a good part of your life in prison. The government under my watch will take your children and throw you behind bars.

It is very easy to judge another man's life because yours is soft as you have claimed. He only asked a simple question, he does not report his parent for you to drag, he didn't even give the details of his family for you to have concluded that the father shifted his responsibility to his first child. I'm sure you are not blind, you read where he said the father is old, you don't know what's happening in his family. Advise him on what he asked and if you don't have the sense to do that, keep your shitty opinions to yourself... Mumu

Incrediblekutty:

It is very easy to judge another man's life because yours is soft as you have claimed. He only asked a simple question, he does not report his parent for you to drag, he didn't even give the details of his family for you to have concluded that the father shifted his responsibility to his first child. I'm sure you are not blind, you read where he said the father is old, you don't know what's happening in his family. Advise him on what he asked and if you don't have the sense to do that, keep your shitty opinions to yourself... Mumu

Yeah, the father is old and as a result, he deserves a pity party for the pains of not one or two, but THREE helpless SS adolescents who now have to depend on the first born of the family for survival. Ediota.

Acidosis:



Yeah, the father is old and as a result, he deserves a pity party for the pains of not one or two, but THREE helpless SS adolescents who now have to depend on the first born of the family for survival. Ediota.

It's easy to judge others sha. That father you're talking about is one of the best dad in the world.

Yemike:

It's easy to judge others sha. That father you're talking about is one of the best dad in the world.

If you say so. All the best to you.

Yemike:
■ It's easy to judge others sha. That father you're talking about is one of the best dad in the world.

Stop that nonsense abeg!

Your dad did you and your siblings evil. It is in realizing this for yourselves that you avoid passing the same wickedness onto your own children, otherwise, it is just in loading mode.

Kobojunkie:
Stop that nonsense abeg!

Your dad did you and your siblings evil. It is in realizing this for yourselves that you avoid passing the same wickedness onto your own children, otherwise, it is just in loading mode.

Thanks boss. I really appreciate.

Emma513:
WHAT IS THE NAME OF THE MEDICINE AND HOW CAN I GET IT.

I wish you are serious, I will happily divulge the necessary information to you because I too got it free of charge

eodavids:


I wish you are serious, I will happily divulge the necessary information to you because I too got it free of charge

HOW! I CAN'T JOKE WITH MY FAMILY HEALTH, WHAT IS THE NAME AND HOW CAN I GET IT

Emma513:
HOW! I CAN'T JOKE WITH MY FAMILY HEALTH, WHAT IS THE NAME AND HOW CAN I GET IT

Emma, I greet you.
There are so many fake people on this site.

You might be genuine. So, you can reach out in a way I can safely give you the full information

Emma513:
HOW! I CAN'T JOKE WITH MY FAMILY HEALTH, WHAT IS THE NAME AND HOW CAN I GET IT

You know, Emma, having two kids being SS in my home was difficult to grapple with, untill my most respected godly man introduced me the a potent remedy.

I had prayed and trusted God to cause a research on SS CHILDREN to be done with potent remedy found...
Today, it's a reality

adicius:
Life expectancy for men with sickle cell is 44years, for women is 47 years on average. I lost my darling sister in 2020 at the age of 44. She was in and out of hospital for her last 2 years. Sickle cell anemia is a terrible condition. God bless all sufferers. Rest in heavenly 🕊️ my darling sister. You will never be forgotten for as long as we live.🙏🏽

I am sorry for her demise
What about her kids...

Did she get married before her demise?

adebwalex:


To be frank with you it not easy. My present Woman was a sickle cell patient (HBSS). I Knew before we got married but love push me to marry her because of her beauty. Thou am AA so i believe it won't affect my children.The kind of prayer I do pray as if am a prayer warrior when this pain started. My advice for you is to ask them to take constant water, eat gissa a lot and they shouldn't expose themselves to cold. Use constant Cold water to bath. Make sure they eat what will give them blood to avoid Taking blood cell from the clinic. When the pain start who do take pentatosine but she have to stop to avoud been addicted to it. Constant medicaton been proscribe by their doctor. It shall be well.

Bro I am about setting down with an HBSS lady......... I am confused if I should continue or stop everything...

[quote author=sirblend post=129030401]

Bro I am about setting down with an HBSS lady......... I am confused if I should continue or stop everything...[/quuote]

My brother it is not easy, thou Hbss patients are not like SS patient. Hbss are still better. But one a while their crises come. It not easy to be frank but my love for her make me strong and i scale through. All my children are AA. If you are AA YOU can stick with her if you can bear her crises. But if you are not AA I advice dont go for it...The Lord will guide you...

[quote author=adebwalex post=129030788][/quote]

Thanks bro

So how many kids do you have?

And how come your kids are AA?

[quote author=adebwalex post=129030788][/quote]

How come your children are AA?

sirblend:


How come your children are AA?

Miracle

sirblend:


Thanks bro

So how many kids do you have?

And how come your kids are AA?

One is AA while the second one AS

Emma513:
HOW! I CAN'T JOKE WITH MY FAMILY HEALTH, WHAT IS THE NAME AND HOW CAN I GET IT

Create another way to discuss it pls