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Nairaland Forum / Nairaland / General / Family / Parents With Sickle Cell Kids How Do You Cope? (21218 Views)
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Re: Parents With Sickle Cell Kids How Do You Cope? by money121(m): 11:03pm On Nov 30, 2023 |
vintageviniba:My brother i weak for here jare africa and miracle 2 Likes 1 Share |
Re: Parents With Sickle Cell Kids How Do You Cope? by bonnyhope: 11:04pm On Nov 30, 2023 |
oliverwrites: You are right Our parents married ignorantly especially in the area of genotype but I thank God we escape it 3 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by EmekaBlue(m): 11:04pm On Nov 30, 2023 |
Makunahatata:sharaap Who tell u say I dey east?! And again I'm sure u r west....if no be Lagos the no man's land...d rest are super quack 3 Likes 2 Shares |
Re: Parents With Sickle Cell Kids How Do You Cope? by dNortherner(m): 11:05pm On Nov 30, 2023 |
I'm sorry pal, I understand your pain but I ain't a doctor I suggest you take them to a good hospital. All the best. 1 Like |
Re: Parents With Sickle Cell Kids How Do You Cope? by Melagros(m): 11:05pm On Nov 30, 2023 |
Yemike:Don't mind the motherfvcker |
Re: Parents With Sickle Cell Kids How Do You Cope? by Toktee(m): 11:05pm On Nov 30, 2023 |
Yemike:Avoid mosques at all costs, always take becomplex and folic acid tabs, avoid cold water and always wear sucks. Finally and importantly, buy a drug called HYDROXYUREA it reduce the frequency of pain crisis almost to zero. 2 Likes 1 Share |
Re: Parents With Sickle Cell Kids How Do You Cope? by Melagros(m): 11:06pm On Nov 30, 2023 |
Acidosis:You're a real mumu...very big one 2 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by Stanweezy(m): 11:08pm On Nov 30, 2023 |
Pathetic Miracle no dey tire Jesus in this case 1 Like |
Re: Parents With Sickle Cell Kids How Do You Cope? by bonnyhope: 11:08pm On Nov 30, 2023 |
money121: Moveee |
Re: Parents With Sickle Cell Kids How Do You Cope? by Abbeytoy(m): 11:09pm On Nov 30, 2023 |
We have 7 sickle cell in my family. |
Re: Parents With Sickle Cell Kids How Do You Cope? by Makunahatata: 11:09pm On Nov 30, 2023 |
EmekaBlue:not surprised ..most of u don run away from that backward enclave ..I repeat,go to a better hospital,this one your genotype dey change..you might be SS ,who knows 😏 4 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by Dennisochampa: 11:10pm On Nov 30, 2023 |
Make man no see bad thing This is why people should know their blood group and genotype before even attempting to fall in love.... So. That they won't subject their kids to a life time of hurt, pain and uncertainty.... I've dated a sickle cell patient before and it's not funny... I go deh pray make she no kpai anytime she come my place.... Imagine being in this shoes of an SS patient.... I don't think it will ever be easy... May God help us all |
Re: Parents With Sickle Cell Kids How Do You Cope? by iknopro(m): 11:12pm On Nov 30, 2023 |
Chaiii, I feel your pain Bro, I had this neighbor in my area then, this man was very rich, he has a company, I won't mention the name for some reasons.but all his kids then were SS, it got to the point that the kids after University those day started dying one after the other, I think they were about 6 of them then, when the last one died, the man couldn't hold it, he died and the next week the wife follow suit, that's how a complete generation was wiped out of the surface of the earth by SS anemia. Chaiii. The Lord is your strength Bro 14 Likes 1 Share |
Re: Parents With Sickle Cell Kids How Do You Cope? by Jakama90(m): 11:13pm On Nov 30, 2023 |
This is so touching: am shedding tears. Please, please!! Please!!! Prevention is better than managing it. My brother you cannot manage it. Don't bring innocent kids into the world just to suffer them. A friend knows that they both are carriers both they went on to get married saying that they will use prayers, now their first child is no more. How do you feel watching your child live through pain? How do you feel watching your child die with tears? How do you feel loosing a child at 17, 18 19 or 20. Please let's keep love aside. If medically you are not match, you are not match.. 6 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by Switruth: 11:14pm On Nov 30, 2023 |
Acidosis:Omo you no get sense at all. You’ll definitely have a child with complications and you’ll understand |
Re: Parents With Sickle Cell Kids How Do You Cope? by DarkJeddi(m): 11:14pm On Nov 30, 2023 |
remzytimer:Your god sucks.. 3 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by Kingson28: 11:16pm On Nov 30, 2023 |
I think government should make genotype testing compulsory for intending couples and make a law prohibiting two AS individuals from getting married and making babies. Your love for each other should not be the painfully miserable existence for your children. 7 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by LillyandDaisy: 11:16pm On Nov 30, 2023 |
What are you thinking, I have 3 SC Brothers as my junior Brothers and we are doing all well..: |
Re: Parents With Sickle Cell Kids How Do You Cope? by Emilo(m): 11:18pm On Nov 30, 2023 |
I married in Catholic church and no one asked me to bring test result before marriage. 7 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by ConfidentialDoc: 11:18pm On Nov 30, 2023 |
I will open a thread on this topic by weekend. |
Re: Parents With Sickle Cell Kids How Do You Cope? by LillyandDaisy: 11:19pm On Nov 30, 2023 |
Yemike:Yes enough fumigation |
Re: Parents With Sickle Cell Kids How Do You Cope? by id4sho(m): 11:20pm On Nov 30, 2023 |
Yemike: Financial drain, keep on with treatment. My observation though |
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:24pm On Nov 30, 2023 |
There is no coping. Only suffering. If you don't have money to get a permanent cure, both you and them will suffer for the longest time possible. Don't ever think that the crisis is because of what they failed to do, don't blame them for falling sick no matter how tired you are, it's the easiest way to push them off the bridge. They blame themselves every second of the day. And secondly, if your parents have abandoned your siblings to your care ,which most parents do, it's only a matter of time before you resent them, if you aren't already. Square your shoulder. And tell your parents the bitter truth. Lastly, your siblings are not your children. Read that again. 8 Likes 1 Share |
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:25pm On Nov 30, 2023 |
Abbeytoy:Nigerians never learn. |
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:27pm On Nov 30, 2023 |
Toktee:NOTHING reduces pain crises to zero 1 Like |
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:29pm On Nov 30, 2023 |
remzytimer:The tin god that couldn't stop them from being born ss in the first place? 3 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by shoprite: 11:29pm On Nov 30, 2023 |
Yemike: I just might have some info that will help . . .Give me till tomorrow I will be back here to share once I confirm from my source. Hang in there! 1 Like |
Re: Parents With Sickle Cell Kids How Do You Cope? by dapova: 11:30pm On Nov 30, 2023 |
See, you have to be strong for them. I can only imagine what you are going through. here are a few tips to guide. 1 daily folic acid. 2. no extreme temperature, especially avoid cold. 3. take lots of water( about 3l daily) 4. no strenuous exercise or activity. avoid extreme sports. 5. have pain killers handy always(as in always) but avoid overdose and addictions. 6. eat healthy (fruits, food,vitamins) you can do multivitamins without iron. 7. avoid exposure to mosquitoes and infection triggers. 8. there are lots of medications out there that have proven to be helpful: Jobelyn, plant stem cell , ciklavit, hydroxylurea etc. Do more research and engage a doctor before use 9. There is a blood exchange process that can be done bi annually or quarterly to exchange the sickled blood cells . Again, speak with a heamatologist or knowledgeable doctor for guidance. 10. Know your limits, no follow do any activity wey your body no go like, live a day at a time and serve God truly and seek his healing and mercy. Also note, you need a close family doctor or nurse wey sabi handling Crisis. Wishing you and your siblings strength through it all. 7 Likes |
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:30pm On Nov 30, 2023 |
DrAda:False. False. |
Re: Parents With Sickle Cell Kids How Do You Cope? by id4sho(m): 11:31pm On Nov 30, 2023 |
money121: 1 Like |
Re: Parents With Sickle Cell Kids How Do You Cope? by maureensylvia(f): 11:31pm On Nov 30, 2023 |
Hmm |
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:31pm On Nov 30, 2023 |
dapova:Do all this. Your next crisis will wake you up by 2:30am. |
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