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Parents With Sickle Cell Kids How Do You Cope? - Family (2) - Nairaland

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Nigerian Man Marries With ‘fake’ Genotype, Abandons Wife With ‘sickle Cell’ Kids / Morally Bankrupt Kids – How To Avoid Raising Them / Nigerian Boy Pranks His Parents With A Fake Snake(Hilarious Video) (2) (3) (4)

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Re: Parents With Sickle Cell Kids How Do You Cope? by money121(m): 11:03pm On Nov 30, 2023
vintageviniba:
bro!! The Bible says "wisdom is profitable to direct" Sometimes God sef go look you tire for your matter. Young lovers go see this one believe say AS fit marry AS. Or SS fit Marry SS, or AS fit Marry SS.
My brother i weak for here jare africa and miracle cry

2 Likes 1 Share

Re: Parents With Sickle Cell Kids How Do You Cope? by bonnyhope: 11:04pm On Nov 30, 2023
oliverwrites:
You are very dumb and very mannerless. How many of our parents know about Genotype? Most parents in their late 50s today did not do genotype test before marrying.

Dumb f*ck.

You are right

Our parents married ignorantly especially in the area of genotype but I thank God we escape it

3 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by EmekaBlue(m): 11:04pm On Nov 30, 2023
Makunahatata:
go do am fr better hospital..not those quack hospitals u have dia in the East
sharaap

Who tell u say I dey east?! And again I'm sure u r west....if no be Lagos the no man's land...d rest are super quack

3 Likes 2 Shares

Re: Parents With Sickle Cell Kids How Do You Cope? by dNortherner(m): 11:05pm On Nov 30, 2023
I'm sorry pal, I understand your pain but I ain't a doctor I suggest you take them to a good hospital. All the best.

1 Like

Re: Parents With Sickle Cell Kids How Do You Cope? by Melagros(m): 11:05pm On Nov 30, 2023
Yemike:

How many people are aware of genotype back then?
Don't mind the motherfvcker
Re: Parents With Sickle Cell Kids How Do You Cope? by Toktee(m): 11:05pm On Nov 30, 2023
Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.
Avoid mosques at all costs, always take becomplex and folic acid tabs, avoid cold water and always wear sucks.
Finally and importantly, buy a drug called HYDROXYUREA it reduce the frequency of pain crisis almost to zero.

2 Likes 1 Share

Re: Parents With Sickle Cell Kids How Do You Cope? by Melagros(m): 11:06pm On Nov 30, 2023
Acidosis:


Your parents are very wicked.
You're a real mumu...very big one

2 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by Stanweezy(m): 11:08pm On Nov 30, 2023
Pathetic

Miracle no dey tire Jesus in this case

1 Like

Re: Parents With Sickle Cell Kids How Do You Cope? by bonnyhope: 11:08pm On Nov 30, 2023
money121:
How can husband be AA and wife is AS, and baby is SS? Paternity fraud looming...

Husband is AA, wife is AS. 3 months after they had their first child, they found out their daughter was SS.

At first, it appeared like a joke, a very bad one. Medically, that isn't or shouldn't be possible. They conducted the genotype test in four medical labs, and the result came out the same.

Husband and wife decided to have their genotype test again. Results were the same.

Then it became clear what was happening. Husband ain't the father of the baby. He secretly had a DNA test and it was confirmed he didn't father the baby.

Amidst the confusion, he asked his wife if he fathered the baby. Wife wouldn't confess. She insisted he fathered the baby. It's just obvious that whoever fathered the baby is AS which resulted in the baby's SS.

They went for a paternity test and it was glaring husband ain't the baby's dad. Wife still insisting she didn't get impregnated externally. She went ahead to do another DNA. Result was the same.

Wife became a shadow of herself. Husband got crazy. Their home became a "once upon a time."

Wife kept researching how possible it was that her husband didn't father her baby and the baby's genotype is SS.

Then she told a friend of the whole matter. Her friend just felt she's using female's antics. "Take responsibility," she was told. She kept swearing and swearing. Her friend told me of the whole drama.

I kept thinking about how this would be possible. Medically, it was impossible for AA to birth SS. Coupled with the DNA results, it was glaring. But wife claiming innocence and swearing on her life was a whole different thing.

I thought of what could have been. Then I arrived at a conclusion: if wife is innocent, then she's not the mother of the child. I immediately called my friend that I've found a possible solution. MNA (maternity test) to the rescue.

They went for an MNA, and test revealed she's not the mother of the baby. Babies were changed at birth. Long story cut short, they involved the police and investigations were carried out.

Multiple tests done "here and there." They got their own baby back - AS. They returned the supposed baby. Hospital was sued for the negligence and trauma.

Wife was so displeased her husband didn't trust her. They settled and made up. They just had their second baby - a boy. Husband stayed with wife in labor room and monitored everything. Once bitten, twice shy.

At times, so called paternity fraud is change of babies at the hospital.

SOLUTION TO THE ABOVE PROBLEMS:

1. Advise your male children, to stay with their wives in the Labour wards, as their wives are delivering.

2. Advise your female children, to insist on their husbands staying in and remaining in the Labour ward, during child births.

The world of today, are full of people with evil intentions.

Together we can make the world a better place

Copied.

Moveee
Re: Parents With Sickle Cell Kids How Do You Cope? by Abbeytoy(m): 11:09pm On Nov 30, 2023
We have 7 sickle cell in my family.
Re: Parents With Sickle Cell Kids How Do You Cope? by Makunahatata: 11:09pm On Nov 30, 2023
EmekaBlue:
sharaap

Who tell u say I dey east?

! And again I'm sure u r west....if no be Lagos the no man's land...d rest are super quack
not surprised ..most of u don run away from that backward enclave ..I repeat,go to a better hospital,this one your genotype dey change..you might be SS ,who knows 😏

4 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by Dennisochampa: 11:10pm On Nov 30, 2023
Make man no see bad thing
This is why people should know their blood group and genotype before even attempting to fall in love.... So. That they won't subject their kids to a life time of hurt, pain and uncertainty....
I've dated a sickle cell patient before and it's not funny...
I go deh pray make she no kpai anytime she come my place....
Imagine being in this shoes of an SS patient....
I don't think it will ever be easy...
May God help us all
Re: Parents With Sickle Cell Kids How Do You Cope? by iknopro(m): 11:12pm On Nov 30, 2023
Chaiii, I feel your pain Bro, I had this neighbor in my area then, this man was very rich, he has a company, I won't mention the name for some reasons.but all his kids then were SS, it got to the point that the kids after University those day started dying one after the other, I think they were about 6 of them then, when the last one died, the man couldn't hold it, he died and the next week the wife follow suit, that's how a complete generation was wiped out of the surface of the earth by SS anemia. Chaiii. The Lord is your strength Bro

14 Likes 1 Share

Re: Parents With Sickle Cell Kids How Do You Cope? by Jakama90(m): 11:13pm On Nov 30, 2023
This is so touching: am shedding tears. Please, please!! Please!!! Prevention is better than managing it. My brother you cannot manage it. Don't bring innocent kids into the world just to suffer them. A friend knows that they both are carriers both they went on to get married saying that they will use prayers, now their first child is no more. How do you feel watching your child live through pain? How do you feel watching your child die with tears? How do you feel loosing a child at 17, 18 19 or 20.
Please let's keep love aside. If medically you are not match, you are not match..

6 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by Switruth: 11:14pm On Nov 30, 2023
Acidosis:


Your parents are very wicked.
Omo you no get sense at all. You’ll definitely have a child with complications and you’ll understand
Re: Parents With Sickle Cell Kids How Do You Cope? by DarkJeddi(m): 11:14pm On Nov 30, 2023
remzytimer:
You can only try your best buy only my God can turn SS to AA let your faith be strong in God. Tell them to attend Shiloh 2023n the God of Shiloh is special in impossibilities. Just come with faith
Your god sucks..

3 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by Kingson28: 11:16pm On Nov 30, 2023
I think government should make genotype testing compulsory for intending couples and make a law prohibiting two AS individuals from getting married and making babies.
Your love for each other should not be the painfully miserable existence for your children.

7 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by LillyandDaisy: 11:16pm On Nov 30, 2023
What are you thinking, I have 3 SC Brothers as my junior Brothers and we are doing all well..:
Re: Parents With Sickle Cell Kids How Do You Cope? by Emilo(m): 11:18pm On Nov 30, 2023
I married in Catholic church and no one asked me to bring test result before marriage.

7 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by ConfidentialDoc: 11:18pm On Nov 30, 2023
I will open a thread on this topic by weekend.
Re: Parents With Sickle Cell Kids How Do You Cope? by LillyandDaisy: 11:19pm On Nov 30, 2023
Yemike:

You're on point. Mosquitoes are combated with mosquito net. But @ the bolded part isn't easy for this Tinubu economy but God is good sha.
Yes enough fumigation
Re: Parents With Sickle Cell Kids How Do You Cope? by id4sho(m): 11:20pm On Nov 30, 2023
Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.

Financial drain, keep on with treatment.
My observation though
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:24pm On Nov 30, 2023
There is no coping. Only suffering.
If you don't have money to get a permanent cure, both you and them will suffer for the longest time possible.
Don't ever think that the crisis is because of what they failed to do, don't blame them for falling sick no matter how tired you are, it's the easiest way to push them off the bridge. They blame themselves every second of the day.

And secondly, if your parents have abandoned your siblings to your care ,which most parents do, it's only a matter of time before you resent them, if you aren't already.
Square your shoulder. And tell your parents the bitter truth.

Lastly, your siblings are not your children. Read that again.

8 Likes 1 Share

Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:25pm On Nov 30, 2023
Abbeytoy:
We have 7 sickle cell in my family.

Nigerians never learn.
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:27pm On Nov 30, 2023
Toktee:
Avoid mosques at all costs, always take becomplex and folic acid tabs, avoid cold water and always wear sucks.
Finally and importantly, buy a drug called HYDROXYUREA it reduce the frequency of pain crisis almost to zero.
NOTHING reduces pain crises to zero

1 Like

Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:29pm On Nov 30, 2023
remzytimer:
You can only try your best buy only my God can turn SS to AA let your faith be strong in God. Tell them to attend Shiloh 2023n the God of Shiloh is special in impossibilities. Just come with faith
The tin god that couldn't stop them from being born ss in the first place?

3 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by shoprite: 11:29pm On Nov 30, 2023
Yemike:
I need people with experience on how to manage SS Crisis.
Both my parent are AS and we the kids are 5. I'm the first child and I'm lucky to be AA, the 2nd born AS, 3rd, 4th, 5th - SS.
I have 3 SS siblings and right now most of their responsibility and wellbeing is on me as the first born cuz my P-man is old already.
Just last week I have to rush down to my brother's school to bring him home cuz he called me in the middle of the night weeping cuz the pain is just too much and his roommate isn't around.
My question now is how can it be managed? cuz it's really affecting everybody cuz It's affecting their studies, I'm exhausted right now cuz anytime it happens it's ends with me borrowing funds to send to them and lastly it's sucks happiness out of the atmosphere as hearing a teenager weeping and knowing you can't do anything about it is saddening.

I've seen some people asking if they as AS can also marry AS please and please don't try it as you'll just be bringing innocent kids here just to suffer. The trauma of you seeing your kids in pain sef no be here.

How can SS Crisis be avoided/managed?

I'd have loved my write up to be well detailed but the little I wrote up there took up to an hour cuz my phone is bad.

You experience and advice will be well appreciated. Thanks.


I just might have some info that will help . . .Give me till tomorrow I will be back here to share once I confirm from my source. Hang in there!

1 Like

Re: Parents With Sickle Cell Kids How Do You Cope? by dapova: 11:30pm On Nov 30, 2023
See, you have to be strong for them. I can only imagine what you are going through.
here are a few tips to guide.
1 daily folic acid.
2. no extreme temperature, especially avoid cold.
3. take lots of water( about 3l daily)
4. no strenuous exercise or activity. avoid extreme sports.
5. have pain killers handy always(as in always) but avoid overdose and addictions.
6. eat healthy (fruits, food,vitamins) you can do multivitamins without iron.
7. avoid exposure to mosquitoes and infection triggers.
8. there are lots of medications out there that have proven to be helpful: Jobelyn, plant stem cell , ciklavit, hydroxylurea etc. Do more research and engage a doctor before use
9. There is a blood exchange process that can be done bi annually or quarterly to exchange the sickled blood cells . Again, speak with a heamatologist or knowledgeable doctor for guidance.
10. Know your limits, no follow do any activity wey your body no go like, live a day at a time and serve God truly and seek his healing and mercy.

Also note, you need a close family doctor or nurse wey sabi handling Crisis.

Wishing you and your siblings strength through it all.

7 Likes

Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:30pm On Nov 30, 2023
DrAda:
Again. Sickle cell is a very manageable disease as long as you are on your meds.
False. False.
Re: Parents With Sickle Cell Kids How Do You Cope? by id4sho(m): 11:31pm On Nov 30, 2023
money121:

Shiloh will turn SS to AA

DEY PLAY grin

1 Like

Re: Parents With Sickle Cell Kids How Do You Cope? by maureensylvia(f): 11:31pm On Nov 30, 2023
Hmm
Re: Parents With Sickle Cell Kids How Do You Cope? by Chee59(f): 11:31pm On Nov 30, 2023
dapova:
See, you have to be strong for them. I can only imagine what you are going through.
here are a few tips to guide.
1 daily folic acid.
2. no extreme temperature, especially avoid cold.
3. take lots of water( about 3l daily)
4. no strenuous exercise or activity. avoid extreme sports.
5. have pain killers handy always(as in always) but avoid overdose and addictions.
6. eat healthy (fruits, food,vitamins) you can do multivitamins without iron.
7. avoid exposure to mosquitoes and infection triggers.
8. there are lots of medications out there that have proven to be helpful: Jobelyn, plant stem cell , ciklavit, hydroxylurea etc. Do more research and engage a doctor before use
9. There is a blood exchange process that can be done bi annually or quarterly to exchange the sickled blood cells . Again, speak with a heamatologist or knowledgeable doctor for guidance.
10. Know your limits, no follow do any activity wey your body no go like, live a day at a time and serve God truly and seek his healing and mercy.

Also note, you need a close family doctor or nurse wey sabi handling Crisis.

Wishing you and your siblings strength through it all.
Do all this. Your next crisis will wake you up by 2:30am.

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